0000000000003853
AUTHOR
Mary M. Cosgrove
Aprendizaje Servicio en la formación inicial docente de Educación Física: Análisis de una propuesta en el contexto norteamericano
Este trabajo analiza los efectos de un proyecto de Aprendizaje Servicio (ApS) sobre la Competencia de Emprendimiento Social (CES) en alumnado de Educación Física. El estudio se aborda utilizando Métodos Mixtos con triangulación metodológica. El apartado cuantitativo utiliza el instrumento Social Entrepreneurship Competency Scale (Capella-Peris, Gil-Gómez, Martí-Puig, & Ruíz-Bernardo, 2019). El estudio cualitativo se desarrolla analizando los diarios reflexivos de los participantes. Los resultados cuantitativos proporcionan evidencias respecto al efecto positivo del ApS sobre la CES. El análisis cualitativo complementa esta visión reflejando cómo se desarrolló dicha competencia, por ejem…
Understanding symptoms in RYR1-Related Myopathies: A mixed-methods analysis based on participants' experience
Background: In rare diseases such as ryanodine receptor 1-related myopathies (RYR1-RM), health-related quality of life (HRQoL) measures are critically important so clinicians and researchers can better understand what symptoms are most important to participants, with the ultimate goal of finding tangible solutions for them. Objectives: The main objective of this study was to characterize symptoms in individuals with RYR1-RM to inform future research. A secondary objective of this study was to analyze positive and negative sentiments regarding symptoms and treatment effects post N-acetylcysteine (NAC) administration in individuals with RYR1-RM. Methods: The study used a mixed-methods design …
Mixed methods analysis of Health-Related Quality of Life in ambulant individuals affected with RYR1-related myopathies pre-post-N-acetylcysteine therapy
Purpose: To characterize Health-Related Quality of Life (HRQoL) in ambulant individuals with RYR1-RM and to determine if a qualitative PRO tool (subjective self-assessment) complements PROMIS and Neuro-QoL scales to detect changes in HRQoL in ambulant individuals with RYR1-RM post N-acetylcysteine (NAC) treatment. Methods: The study used a mixed methods research (MMR) design applying methodological triangulation. Qualitative data were collected via semi-structured interviews using open-ended questions. Quantitative data were gathered through PROMIS and Neuro-QoL instruments. Additionally, qualitative data were transformed into quantitative data for subjective self-assessment and frequency a…