0000000000059907

AUTHOR

L. Gómez-lópez

showing 3 related works from this author

Factors predicting distress among parents/caregivers of children with neurological disease and home enteral nutrition

2013

Background & aims Caregivers of children with chronic diseases included in a home enteral nutrition (HEN) programme are at risk of experiencing a feeling of burden, high level of anxiety and psychological distress. The aims of this study were: first, to examine the prevalence of symptoms of anxiety–depression in caregivers of children with neurological diseases requiring HEN by gastrostomy tube (GT); second, to compare the characteristics of caregivers with high or low risk of exhibiting symptoms of anxiety–depression; and third, to investigate possible associations to child disease severity and nutrition support mode. Methods A cross-sectional observational study was performed in 58 caregi…

Pediatricsmedicine.medical_specialtybusiness.industryCross-sectional studyPublic Health Environmental and Occupational HealthDiseaseAnthropometryDistressParenteral nutritionPediatrics Perinatology and Child HealthDevelopmental and Educational PsychologyMedicineAnxietyObservational studymedicine.symptombusinessPsychiatryDepression (differential diagnoses)Child: Care, Health and Development
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Psychometric properties of the structured Satisfaction Questionnaire with Gastrostomy Feeding (SAGA-8) for caregivers of children with gastrostomy tu…

2013

BACKGROUND: To analyse the psychometric properties of the structured Satisfaction Questionnaire with Gastrostomy Feeding (SAGA-8) in parents/caregivers of children with home enteral nutrition (HEN) by gastrostomy tube (GT). METHODS: Eighty-six caregivers (mothers) of paediatric patients with HEN by GT were recruited. Patients suffered from neurological disease (61.6%) and other chronic diseases. The SAGA-8 scale, a structured questionnaire to explore satisfaction with HEN by GT, and the Caregiver Burden Inventory (Zarit) were completed. The discriminating power of each of the SAGA-8 items, internal consistency and external validity were evaluated. An exploratory factor analysis and Kaiser-M…

MalePediatricsmedicine.medical_specialtyAdolescentPsychometricsmedicine.medical_treatmentMedicine (miscellaneous)Gastrostomy feedingMothersInstitutional supportExternal validityCost of IllnessSurveys and QuestionnairesOutcome Assessment Health CaremedicineHumansChildNutricióNutritionGastrostomyNutrition and Dieteticsbusiness.industryNutritional SupportMalnutritionCuidadorsPatient satisfactionCaregiver burdenSatisfaction questionnaireGastrostomyExploratory factor analysisCaregiversGastrostomy tubePatient SatisfactionSpainSatisfacció dels pacientsChild PreschoolChronic DiseaseFemaleNervous System DiseasesbusinessParenteral Nutrition HomePsicometriaClinical psychology
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Analysis of the Spanish national registry for pediatric home enteral nutrition (NEPAD): implementation rates and observed trends during the past 8 ye…

2013

The home enteral nutrition (HEN) provides nutritional support to children with chronic diseases who are nutritionally compromised and allows them to be discharged more quickly from hospitals. In 2003, a web-based registry (Nutricion Enteral Pediatrica Ambulatoria y Domiciliaria, Pediatric Ambulatory and Home Enteral Nutrition -NEPAD-) was created with the objective of gathering information about pediatric HEN practices in Spain. The aim of this study was to report the implementation of the NEPAD (Nutricion Enteral Pediatrica Ambulatoria y Domiciliaria, Pediatric Ambulatory and Home Enteral Nutrition) registry of pediatric HEN in Spain and to analyze data evolution trends from 2003 to 2010. …

MalePediatricsmedicine.medical_specialtymedicine.medical_treatmentMEDLINEMedicine (miscellaneous)DiseaseWhite PeopleEnteral NutritionmedicineHumansProspective StudiesRegistriesProspective cohort studyChildIntubation GastrointestinalGastrostomyInternetNutrition and Dieteticsbusiness.industryInfantGastrostomyHospitalsPatient DischargeDiscontinuationParenteral nutritionSpainChild PreschoolAmbulatoryFemaleNational registryNervous System DiseasesbusinessChild Nutritional Physiological PhenomenaParenteral Nutrition HomeEuropean journal of clinical nutrition
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