6533b7d9fe1ef96bd126b93c

RESEARCH PRODUCT

Musculoskeletal ultrasound in hemophilia: Results and recommendations from a global survey and consensus meeting

Pascal N. TyrrellSébastien LobetShyamkumar N. KeshavaJames S. O’donnellAndrea S. DoriaNicholas J. GoddardPaul BabynKaren StrikePradeep M. PoonnooseAnnette Von DrygalskiIan BeggsHelen PergantouSridhar GibikoteFelipe QuerolYing-jia LiEric Y. ChangMarilyn J. Manco-johnsonBrian M. FeldmanLogi VidarssonAlok SrivastavaP. HilliardOlympia PapakonstantinouNihal BakeerVictor S. BlanchetteRebecca Kruse-jarresCindy BaileyAudrey AbadSharon FunkSaunya DoverAmy L. DunnDanial M IgnasBruno SteinerMerel A. TimmerCarlo Martinoli

subject

congenital hereditary and neonatal diseases and abnormalitiesmedicine.medical_specialtyDiagnostic ultrasoundMusculoskeletal ultrasoundUnmet needsTerminologysurveyshemic and lymphatic diseaseshemophiliaHealth careMedicineImage acquisitionMedical physicsDiseases of the blood and blood-forming organsClinical caremusculoskeletalbusiness.industryOriginal ArticlesHematologyultrasonographyconsensus hemophilia musculoskeletal surveys ultrasonographyconsensusOriginal ArticlePatient representativesRC633-647.5business

description

Abstract Introduction For persons with hemophilia, optimization of joint outcomes is an important unmet need. The aim of this initiative was to determine use of ultrasound in evaluating arthropathy in persons with hemophilia, and to move toward consensus among hemophilia care providers regarding the preferred ultrasound protocols for global adaptation. Methods A global survey of hemophilia treatment centers was conducted that focused on understanding how and why ultrasound was being used and endeavored to move toward consensus definitions of both point‐of‐care musculoskeletal ultrasound (POC‐MSKUS) and full diagnostic ultrasound, terminology to describe structures being assessed by ultrasound, and how these assessments should be interpreted. Next, an in‐person meeting of an international group of hemophilia health care professionals and patient representatives was held, with the objective of achieving consensus regarding the acquisition and interpretation of POC‐MSKUS and full diagnostic ultrasound for use in the assessment of musculoskeletal (MSK) pathologies in persons with hemophilia. Results The recommendations were that clear definitions of the types of ultrasound examinations should be adopted and that a standardized ultrasound scoring/measurement system should be developed, tested, and implemented. The scoring/measurement system should be tiered to allow for a range of complexity yet maintain the ability for comparison across levels. Conclusion Ultrasound is an evolving technology increasingly used for the assessment of MSK outcomes in persons with hemophilia. As adoption increases globally for clinical care and research, it will become increasingly important to establish clear guidelines for image acquisition, interpretation, and reporting to ensure accuracy, consistency, and comparability across groups.

10.1002/rth2.12531https://doaj.org/article/aac29a5b584c48edaacdc074325faf1a