6533b7defe1ef96bd12768a5

RESEARCH PRODUCT

Pooling and expanding registries of familial hypercholesterolaemia to assess gaps in care and improve disease management and outcomes: Rationale and design of the global EAS Familial Hypercholesterolaemia Studies Collaboration

Della ColeHapizah Md NawawiKhalid Al-rasadiBørge G. NordestgaardJosip CarJosip CarTomáš FreibergerAsif AkramAsif AkramMartin P. BogsrudLourdes Ella G. SantosJie LinBranislav VohnoutOlivier S. DescampsAntonio J. Vallejo-vazFrederick J. RaalAlexandros D. TselepisG. Kees HovinghFahad AlnouriAndré R. MiserezBelma PojskicNan LinHandrean SoranUlrich LaufsGerald F. WattsOlena MitchenkoZaneta PetrulionieneZlatko FrasAmirhossein SahebkarGustavs LatkovskisSreenivasa Rao Kondapally SeshasaiPedro MataLennart NilssonAbdullah ShehabErkin M. MirrakhimovNelson MajanoShizuya YamashitaAndrey V. SusekovVincent MaherLixin JiangDan GaitaI.m. GasparAlberico L. CatapanoMariko Harada-shibaBrian TomlinsonMarianne AbifadelPablo CorralA. David MaraisMyra TilneyCarlos A. Aguilar-salinasMaciej BanachMeral KayıkçıoğluRonen DurstJ. GenestHeribert SchunkertM. Naceur SlimaneŽEljko ReinerWinfried MärzMarat V. EzhovEvangelos LiberopoulosTa-chen SuKausik K. RayMario StollMafalda BourbonRichard CeskaCarolyn S.p. LamHans DieplingerRodrigo AlonsoCan T. DoGyörgy ParaghJohn J.p. KasteleinRaul D. SantosEric BruckertElisabeth Widen

subject

PREDICTIONInternational CooperationPoolingInformation Storage and RetrievalDisease030204 cardiovascular system & hematologyGUIDELINESDoenças Cardio e Cérebro-vascularesLDL-Cholesterol0302 clinical medicineCardiovascular DiseaseMedicineData MiningCardiac and Cardiovascular Systems030212 general & internal medicineRegistriesDisease management (health)Cooperative BehaviorGENERAL-POPULATIONRISKFamilial hypercholesterolaemia ; LDL-Cholesterol ; Cardiovascular disease ; RegistryKardiologiCONSENSUS PANELDelivery of Health Care IntegratedGeneral MedicineOrvostudományokCardiovascular diseasePREVALENCE3. Good healthTreatment OutcomeCARDIOVASCULAR-DISEASEResearch DesignFamilial hypercholesterolaemiaCardiology and Cardiovascular MedicineRegistrymedicine.medical_specialtyBest practiceKlinikai orvostudományokAccess to InformationHyperlipoproteinemia Type II03 medical and health sciencesEUROPEAN ATHEROSCLEROSIS SOCIETYInternal MedicineHumansOrganizational ObjectivesBespokeStudy DesignGUIDANCEbusiness.industryPublic healthStudy designProfessional Practice GapsData sharingClinical trialCardiovascular System & Hematology3121 General medicine internal medicine and other clinical medicineFamily medicineFamilial hypercholesterolaemia; LDL-Cholesterol; Cardiovascular disease; Registry; Study design; Familial Hypercholesterolaemia Studies CollaborationFamilial Hypercholesterolaemia Studies CollaborationFamilial HypercholesterolaemiaINDIVIDUAL PARTICIPANT DATAbusiness

description

WOS: 000393031600001

yearjournalcountryeditionlanguage
2016-12-01
10.1016/j.atherosclerosissup.2016.10.001https://pure.amc.nl/en/publications/pooling-and-expanding-registries-of-familial-hypercholesterolaemia-to-assess-gaps-in-care-and-improve-disease-management-and-outcomes-rationale-and-design-of-the-global-eas-familial-hypercholesterolaemia-studies-collaboration(c52cb576-f803-47fe-9565-77c0f31fd914).html