6533b858fe1ef96bd12b6d0d
RESEARCH PRODUCT
The debate on rare diseases : a look at media response
Antonio Miguel Bañón HernándezJosep Solves Almelasubject
Medios de comunicación social.MultidisciplinaryHistory and Philosophy of ScienceMass media.Medicamentos - Crítica y objeción.Enfermedades raras - Discursos políticos.Duchenne Muscular Distrophy - Chemotherapy.Rare diseases - Political speeches.Duchenne Distrofia muscular de - Farmacoterapia.Drugs - Criticism and objection.humanitieshealth care economics and organizationsdescription
Este artículo se encuentra disponible en la siguiente URL: https://ojs.uv.es/index.php/Metode/article/view/7188/7809 Este monográfico lleva por título "Science grid : the public understanding of science". Rare diseases (RDs) are those that affect fewer than five people in every 10,000. There are around 7,000 RDs, they are difficult to diagnose and very few have a treatment. This article explores how the media report on the arguments and counter-arguments regarding the access to drugs for these pathologies, with critical discourse analysis for the case of Duchenne muscular dystrophy. We concluded that, in times of crisis, the debate polarises around economic arguments (the price of drugs), reinforced by doubts about their healing effectiveness.
| year | journal | country | edition | language |
|---|---|---|---|---|
| 2015-06-15 |