Search results for " caregiver"
showing 10 items of 86 documents
Transition Care in Anorexia Nervosa Through Guidance Online from Peer and Carer Expertise (TRIANGLE): Study Protocol for a Randomised Controlled Trial
2017
TRIANGLE is a multicentre trial investigating whether the addition of a novel intervention for patients and carers (ECHOMANTRA) to treatment as usual (TAU) improves outcomes for people with anorexia nervosa (AN). ECHOMANTRA is based on the cognitive interpersonal model of AN and includes assessments, workbooks, videos, online groups and joint Skype sessions for patients and carers. People receiving intensive hospital treatment (N = 380) will be randomised to TAU or TAU plus ECHOMANTRA. Participants will be assessed over an 18-month period following randomisation. The primary outcome is patient psychological well-being at 12 months postrandomisation. Secondary outcomes include (i) patient's …
The Impact of COVID-19 Quarantine on Patients With Dementia and Family Caregivers: A Nation-Wide Survey
2021
IntroductionPrevious studies showed that quarantine for pandemic diseases is associated with several psychological and medical effects. The consequences of quarantine for COVID-19 pandemic in patients with dementia are unknown. We investigated the clinical changes in patients with Alzheimer’s disease and other dementias, and evaluated caregivers’ distress during COVID-19 quarantine.MethodsThe study involved 87 Italian Dementia Centers. Patients with Alzheimer’s Disease (AD), Dementia with Lewy Bodies (DLB), Frontotemporal Dementia (FTD), and Vascular Dementia (VD) were eligible for the study. Family caregivers of patients with dementia were interviewed by phone in April 2020, 45 days after …
Caring for People With Dementia Under COVID-19 Restrictions: A Pilot Study on Family Caregivers
2021
IntroductionThe present pilot study examined to what extent the COVID-19 lockdown affected the behavioral and psychological symptoms of dementia (BPSD) in people with dementia and worsened their family caregivers’ distress. The associations between changes in the BPSD of relatives with dementia (RwD) and in their caregivers’ distress, and sense of social and emotional loneliness, and resilience were also investigated.Materials and MethodsThirty-five caregivers of RwD attending formal healthcare services before the COVID-19 lockdown volunteered for the study, and were interviewed by phone during the lockdown. Caregivers completed the NeuroPsychiatric Inventory (NPI) to assess their care reci…
Being the Family Caregiver of a Patient With Dementia During the Coronavirus Disease 2019 Lockdown
2021
Background: Family caregivers of patients with dementia are at high risk of stress and burden, and quarantine due to the coronavirus disease 2019 (COVID-19) pandemic may have increased the risk of psychological disturbances in this population. The current study was carried out during the national lockdown declared in March 2020 by the Italian government as a containment measure of the first wave of the coronavirus pandemic and is the first nationwide survey on the impact of COVID-19 lockdown on the mental health of dementia informal caregivers.Methods: Eighty-seven dementia centers evenly distributed on the Italian territory enrolled 4,710 caregiver–patient pairs. Caregivers underwent a tel…
La formazione del caregiver: un’indagine esplorativa sui bisogni e le competenze di chi si prende cura
2021
In Italy, most people with dementia are looked after by an informal caregiver and, due to the care burden and the lack of systematic-institutional support, they risk deleterious effects on psycho-physical well-being and on relational functionality with the assisted. Considering the ontological dimension of care, it is necessary to deepen the pedagogical implications deriving from the needs of the caregiver of people with Alzheimer Disease. The survey carried out based on the administration of two tools: the semi-structured interview addressed to the associations that in the Sicilian territory deal with family support and the check-list for conducting focus groups with cargivers, allowed the…
La costruzione narrativa del prendersi cura dell'altro. Analisi qualitativa di un dispositivo gruppale di caregiver di pazienti affetti da patologie …
Gran parte della letteratura sui caregiver di persone affette da patologie cronico-degenerative è centrata sulla valutazione delle ripercussioni negative dell’attività di cura sullo stato di salute e sulle condizioni di vita; inoltre i discorsi culturalmente veicolati intorno alle patologie dementigene tendenzialmente condividono un linguaggio negativo, omogeneo, costruito attorno ai significati di perdita, dipendenza, devastazione. Partendo da queste premesse la presente ricerca, facente riferimento ad uno studio esplorativo basato sull’analisi qualitativa di un single case, si propone di osservare, in ottica costruzionista, l’esperienza di malattia vissuta dai caregiver nella loro relazio…
Anticipated Grief in Relatives of People with Alzheimer's Disease: Discourse Analysis
2021
Resumen La enfermedad de Alzheimer (EA) es la demencia más frecuente, considerada un proceso crónico e incurable. Los cuidadores de personas con EA pueden experimentar duelo anticipado. El objetivo fue observar el desarrollo de duelo anticipado en familiares de personas con EA. Participaron 10 cuidadores familiares de personas con EA en estado moderado o avanzado (70 % mujeres), de entre 18 y 80 años. Respondieron una entrevista semiestructurada (sentimientos, reconocimiento de la muerte, reorganización familiar, esperanza, facilitación o resistencia a la muerte y aproximación o distanciamiento del familiar). Se empleó la técnica del análisis cualitativo del contenido empleando la triangula…
Anàlisi sobre el perfil i situació dels cuidadors (formals i familiars) de les persones que pateixen Alzheimer, en la zona de la Vall d'Albaida
2013
The Alzheimer’s disease is nowadays known all around the world, however not everybody is aware of the aftermath that this disease produces in those who suffer it directly and indirectly. There is even less awareness of the importance of providing care to those who give care. Therefore I decided to conduct a little research to know the profile of people with Alzheimer and their caregivers residing in the Vall d’Albaida area (Valencia, Spain) and to analyze the services that are provided to them in order to detect whether they are sufficient or they could be improved. The results of the research are shown below; however I would like to “disclose” that it is necessary to get a greater involvem…
Impact biopsychosocial de la charge des aidants : pourquoi faut-il porter une attention spécifique envers la santé des aidants ?
2018
There are 11 million family caregivers in France and some estimates indicate that there will be 17 million in 2020. Caregiving is a source of chronic stress that requires adaptation and coping strategies. Caregiving may benefit the health of a caregiver with a positive coping style and altruistic goals. However, the caregiver's burden is frequently associated with negative effects in terms of biopsychosocial imbalance and medical conditions, with frequent anxiety and depression. The management of the caregiving burden starts with the recognition of health professionals - caregivers may benefit from consultation-liaison psychiatry and multidisciplinary medico-social strategies, in addition t…
Defence strategies in an online community of caregivers
2021
Purpose The purpose of this paper is to understand caregivers’ discursive constructions and responses to their unwanted (family and social) role as resulting in exchanges on social media. Online group platforms are understood as particularly suitable for the expression of intimate feelings among adults, for meeting and exhibiting stigma issues, and for the circulation of information and support (Suler, 2004; McCormack, 2010; Pounds et al., 2018). Design/methodology/approach This paper draws from digital Conversation Analysis (Giles et al., 2015), and considers data after combining quantitative (corpus analysis) and qualitative methods, from a critical discourse analysis perspective. The St…