Search results for " caregiver"

showing 10 items of 86 documents

Living with Long Term Conditions from the Perspective of Family Caregivers. A Scoping Review and Narrative Synthesis

2021

(1) Background: When living with one or more long term conditions (LTCs), both the patient and the family experience the impact of the condition at different levels. The family’s needs and perceptions should be considered in the process of caring for people with LTCs. The aim of this review is to understand “the process of living with LTCs” from a family perspective. (2) Methods: A scoping review and narrative synthesis were conducted using a systematic methodology in MEDLINE, CINAHL, Web of Science and PsycINFO, in English and Spanish, including evidence from 2018. (3) Results: A total of 28 articles were included in the review. Acceptance, coping, self-management, integration, and adjustm…

GerontologyCoping (psychology)living with long term conditionsHealth Toxicology and MutagenesisMEDLINEReviewPsycINFOCINAHL03 medical and health sciencesexperience0302 clinical medicineAdaptation PsychologicalHumansNarrative030212 general & internal medicineNarration030504 nursingFamily caregiversCommunicationPerspective (graphical)RPublic Health Environmental and Occupational HealthCaregiversMedicinefamily caregiversperson-centred care0305 other medical sciencePsychologyMeaning (linguistics)International Journal of Environmental Research and Public Health
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Evaluation of efficacy and efficiency of a pragmatic intervention by a social worker to support informal caregivers of elderly patients (The ICE Stud…

2016

Medical progress and the lifestyle modification have prolonged life expectancy, despite the development of chronic diseases. Support and care for older subjects are often provided by a network of informal caregivers composed of family, friends and neighbors, who are essential in helping older persons to continue living at home. It has been shown that the extent and diversity of informal tasks may jeopardize the physical, mental and social wellbeing of caregivers. The aim of the Informal Carers of Elderly cohort is to define, through a longitudinal study, profiles of caregivers of older patients with a diagnosis of one of the following diseases: cancer (breast, prostate, colorectal), neurode…

GerontologyMaleLongitudinal studyAgingComparative Effectiveness ResearchdemographyTime Factors[SDV]Life Sciences [q-bio]Health StatusHealth-related quality of lifeSocial WorkersMedicine (miscellaneous)DiseaseAnxietylaw.invention[SHS]Humanities and Social SciencesStudy Protocol0302 clinical medicineElderlyRandomized controlled trialCost of IllnesslawNeoplasmsHealth careAdaptation PsychologicalMedicinePharmacology (medical)030212 general & internal medicineLongitudinal StudiesProspective StudiesComputingMilieux_MISCELLANEOUSQualitative ResearchCancerCost-utility[SHS.DEMO] Humanities and Social Sciences/DemographyDepressionAge FactorsNeurodegenerative DiseasesMiddle Aged3. Good healthInformal caregiversCaregiversLongitudinal cohort studyCardiovascular DiseasesResearch DesignCohortFemaleFranceIndependent Living[SHS.DEMO]Humanities and Social Sciences/DemographyChronic disease03 medical and health sciencesSocial supportIntervention (counseling)HumansRandomized studyAgedbusiness.industrySocial SupportLife expectancyQuality of Lifebusiness[ SHS.DEMO ] Humanities and Social Sciences/Demography030217 neurology & neurosurgeryTrials
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Perceived Burden among Spouse, Adult Child and Parent Caregivers

2018

Aims To identify what factors are associated with the caregiver burden of spouse caregivers, adult child caregivers, and parent caregivers. Background Caregivers often feel stressed and perceive caregiving as a burden. The caregiver burden has been little studied from the perspective of the personal relationship between caregiver and care recipient. Design Cross-sectional study. Methods A random sample of 4,000 caregivers in Finland was drawn in 2014 and those who remained either spouse, adult child, or parent caregivers at data collection were included in the analysis (N = 1,062). Data collection included recipients' characteristics. Caregivers' perceived burden was measured using the Care…

GerontologyMaleParents0302 clinical medicineCost of IllnessomaishoitajatnursingSurveys and QuestionnairesNursing Interventions ClassificationMedicine030212 general & internal medicinenursing (work)General NursingFinlandmedia_commonta316Aged 80 and overDaughteradult child caregiverDepressionPersonal relationshipCognitionCaregiver burdenta3142Middle AgedSpouse Caregiversspouse caregiverCaregiversSpouseAdult ChildrenFemaleAdultmedia_common.quotation_subjectcaregivingparent caregivergeneral linear models03 medical and health sciencesYoung AdultHumansomaishoitoSpousesAgedperceived caregiver burdenbusiness.industrySocial SupportCross-Sectional Studiestyön kuormittavuusPerceptionbusinessOlder peopleCognition Disorderskoettu hyvinvointi030217 neurology & neurosurgeryStress PsychologicalJournal of Advanced Nursing
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Predictive Role of Caregiver Type, Dependency Level and Time Caring on the Impact of Caring for a Dependent Relative as a Stressor

2014

This work presents the evaluation of the stress symptoms associated to the task of caring for a dependent relative at home. The role played by variables such as type of caregiver (nurse/non-nurse), the relative dependency level, the number of hours per day dedicated to caring and the years the caregiver had been caring for the relative was studied. The sample was made up of 100 caregivers, and the variables associated to stress studied in the present work were intrusion, avoidance and activation. Results showed that non-nurse caregivers caring for a low dependency relative for a period of less than two years were those suffering a higher impact, with more symptoms associated to stress. Hour…

Gerontologylcsh:Public aspects of medicinelcsh:BF1-990Stressorhoras de cuidadolcsh:RA1-1270Stress; type of caregiver; dependency level; hours caring; years caringLower risktipo de cuidadorClinical PsychologyIntrusionlcsh:PsychologyIntervention (counseling)años cuidandoDevelopmental and Educational PsychologydependenciaPsychologyApplied PsychologyEstrésDependency (project management)European Journal of Investigation in Health, Psychology and Education; Volume 4; Issue 3; Pages: 193-202
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The Experiences and Views on Palliative Care of Older People with Multimorbidities, Their Family Caregivers and Professionals in a Spanish Hospital

2022

The increasing prevalence of complex chronic diseases in the population over 65 years of age is causing a major impact on health systems. This study aims to explore the needs and preferences of the multimorbid patient and carers to improve the palliative care received. The perspective of professionals who work with this profile of patients was also taken into account. A qualitative study was conducted using semi-structured interviews with open-ended questions. Separate topic guides were developed for patients, careers and health professionals. We included 12 patients, 11 caregivers and 16 health professionals in Spain. The results showed multiple unmet needs of patients and families/caregiv…

Health Information ManagementLeadership and ManagementAtencióHealth Policychronic diseases; multimorbidity; qualitative research; older people; caregiversMalaltiesHealth InformaticsMedicina socialitzadaGeriatria
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Effectiveness of a physical therapeutic exercise programme for caregivers of dependent patients: a pragmatic randomised controlled trial from Spanish…

2020

Producción Científica

Health Toxicology and MutagenesisCalidad de vidaCost-Benefit Analysislcsh:Medicinefemale caregivers3213.11 Fisioterapialaw.invention:Organisms::Eukaryota::Animals::Chordata::Vertebrates::Mammals::Primates::Haplorhini::Catarrhini::Hominidae::Humans [Medical Subject Headings]0302 clinical medicineRandomized controlled triallawSalud pública030212 general & internal medicineFisioterapiaFamily caregiverspublic healthCuidadores:Health Care::Health Services Administration::Patient Care Management::Comprehensive Health Care::Primary Health Care [Medical Subject Headings]Exercise TherapyTreatment OutcomeCaregiversAnxietyFemalePublic Healthmedicine.symptom:Analytical Diagnostic and Therapeutic Techniques and Equipment::Therapeutics::Physical Therapy Modalities::Exercise Therapy [Medical Subject Headings]Developed countryQuality of lifemedicine.medical_specialty:Health Care::Health Care Facilities Manpower and Services::Health Personnel::Caregivers [Medical Subject Headings]Exercise therapyArticle03 medical and health sciencesprimary careQuality of life (healthcare):Health Care::Health Care Economics and Organizations::Economics::Costs and Cost Analysis::Cost-Benefit Analysis [Medical Subject Headings]Atención primaria de salud32 Ciencias MédicasmedicineHumansWomen:Humanities::Humanities::Philosophy::Life::Quality of Life [Medical Subject Headings]physiotherapyPrimary care (Medicine):Analytical Diagnostic and Therapeutic Techniques and Equipment::Diagnosis::Prognosis::Treatment Outcome [Medical Subject Headings]:Geographical Locations::Geographic Locations::Europe::Spain [Medical Subject Headings]therapeutic exercisePrimary Health Carebusiness.industryPublic healthlcsh:RPublic Health Environmental and Occupational HealthMental healthClinical trial:Check Tags::Female [Medical Subject Headings]quality of lifeSpainDependenciaPhysical therapybusinessCuidador familiarPhysical therapy030217 neurology & neurosurgery
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Efectos de un programa de intervención cognitivo-conductual sobre la salud de cuidadores de personas con trastorno del espectro autista

2015

Caregivers of people with autism spectrum disorder (ASD) are chronically exposed to high levels of stress. In turn, such stress is associated with high rates of negative health outcomes. However, few studies have analyzed the effects of psychotherapeutic interventions in improving health in this population. The main aim of the present study was to evaluate the effectiveness of a cognitive-behavioral intervention program, based on the model proposed by Ruiz-Robledillo and Moya-Albiol (2014a). For this, we used a sample of 17 informal caregivers of people diagnosed with ASD. The study was based on a pre-post design. Caregivers had lower levels of burden immediately after the intervention than…

HealthIntervención cognitivo-conductualSobrecargaMoodFamily caregiversCognitive-behavioral interventionSaludBurdenTrastorno del espectro autistaAutism spectrum disorderEstado de ánimoCuidadores familiares
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Caring by Telecare? A Hermeneutic Study of Experiences among Older Adults and Their Family Caregivers

2018

Aims and objectives To obtain a deeper understanding of the persistent use of telecare for older adults and their family caregivers. Background Telecare is seen as part of the solution in home care services for ageing in place. Previous studies have shown that telecare is a complex intervention, and there is still a poor understanding of older adults' and their family caregivers' experience with the use of telecare. Design This study used a qualitative hermeneutic research approach. Method Interviews were conducted with 18 older adults and follow-up interviews were conducted with 15 participants after 5-6 months of use. In addition, interviews were conducted with seven close family caregive…

HermeneuticsMalemedia_common.quotation_subjectContext (language use)Interviews as Topic03 medical and health sciences0302 clinical medicineNursingIntervention (counseling)Humans030212 general & internal medicineQualitative ResearchGeneral NursingAgedmedia_commonAged 80 and overFamily caregivers030503 health policy & servicesTelecareGeneral MedicineMiddle AgedHome Care ServicesTelemedicineChecklistPeer reviewCaregiversFeelingFemaleIndependent Living0305 other medical sciencePsychologyIndependent living
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Inclusive Design for Alzheimer’s Disease: Low-cost Treatments, Design and ICT

2019

Inability to acquire new memories, difficulty to remember recent events and to recognize objects, places and people, visual-spatial disorientation, these are some of the disorders with which who is affected by neurological diseases must learn to live with. In a continuously evolving society, where the decreasing birth rate and the drops in mortality are consistent, the job of Architecture is precisely to interpret the requirements and needs of people who have lost the canonical relationship with the world and give them the possibility to recover it or maintain it through communication channels that use their remaining ability to understand. The indoors and outdoors acquire a “prosthesis fun…

Incapacità di acquisire nuovi ricordi difficoltà nel ricordare eventi osservati recentemente mancata identificazione delle cose dei luoghi e delle persone disorientamento visivo-spaziale sono questi e molti altri i disturbi con cui devono imparare a convivere coloro che sono colpiti da malattie neurologiche. In una società in continua evoluzione dove la diminuzione della natalità e l’innalzamento della soglia di mortalità divengono costanti il compito dell’Architettura è proprio quello d’interpretare le esigenze e i bisogni di persone che hanno perso il rapporto canonico con il mondo e offrire loro le possibilità di recuperarlo o di mantenerlo attraverso canali di comunicazione che sfruttino le loro residue capacità di comprensione. Lo spazio interno ed esterno assume così una “funzione protesica” contenendo ed esprimendo in sé le conoscenze necessarie per la sua corretta fruizione riducendo il senso di frustrazione attraverso la sensazione di sicurezza e di benessere che il malato deve percepire vivendolo. Il presente saggio propone un contributo alla diffusione di conoscenze e di informazioni utili a coloro che operano nel settore della programmazione e della progettazione di strutture socio-sanitarie riportando soluzioni terapeutiche “non farmacologiche” low-cost e sostenibili promosse dalla ricerca tecnologica internazionale e nazionale nel settore della progettazione tecnologica e delle ICT e che hanno dimostrato di essere in grado di produrre significativi benefici sia ai malati sia ai caregivers.Settore ICAR/12 - Tecnologia Dell'Architettura
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Frail elderly with and without cognitive impairment at the end of life: Their emotional state and the wellbeing of their family caregivers.

2017

Abstract Purpose of the study (1) To identify the main predictors of the emotional state of the frail elderly at the end-of-life and that of their primary family caregivers, taking into consideration the presence/absence of significant cognitive impairment in the patient and (2) to analyse the relationship between the emotional state of the patient and that of their primary family caregiver. Methods Our study is cross-sectional. 85 frail elderly patients at the end-of-life and their primary family caregivers participated. Information on the following aspects was collected: (1) From the patients: Socio-demographics, Functional independence, and Cognitive and Emotional state; (2) From the car…

MaleAgingHealth (social science)Frail ElderlyEmotions03 medical and health sciences0302 clinical medicineEmotional distressHumansFrail elderlyCognitive Dysfunction030212 general & internal medicineCognitive impairmentAgedAged 80 and overTerminal CareFamily caregiversCognitionMiddle AgedCross-Sectional StudiesCaregivers030220 oncology & carcinogenesisFunctional independenceFemaleGeriatrics and GerontologyPsychologyGerontologyClinical psychologyArchives of gerontology and geriatrics
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