Search results for "AREG"
showing 10 items of 254 documents
Rehabilitation for Multiple Sclerosis in Adults (I); Impairment and Impact on Functioning and Quality of Life: An Overview
2010
Multiple sclerosis (MS) is a chronic, central nervous system, disabling disease. International Classification of Functioning and relevant generic and specific outcome measures are reported. Problems perceived by people with MS (PwMS) affect mobility, sight, continence, feeding, or cognitive impairment, depending on whether acute, chronic, or long-term disability was involved. The most common body function and structure impairments leading to disability and reported by health care professionals are fatigue, weakness, decreased fitness, sensory disorders, pain, upper motor neuron syndromes, ataxia and tremor, balance and postural control problems, gait pattern disorders, visual problems, and …
Narrative Medicine to integrate patients’, caregivers’ and clinicians’ migraine experiences: the DRONE multicentre project
2021
Abstract Background Although migraine is widespread and disabling, stigmatisation and poor awareness of the condition still represent barriers to effective care; furthermore, research on migraine individual and social impact must be enhanced to unveil neglected issues, such as caregiving burden. The project investigated the migraine illness experience through Narrative Medicine (NM) to understand daily life, needs and personal resources of migraneurs, their caregivers and clinicians, and to provide insights for clinical practice. Methods The project involved 13 Italian headache centres and targeted migraneurs, their caregivers and migraine specialists at these centres. Written narratives, c…
Qualità della vita e carico assistenziale dei caregiver di pazienti affetti da demenza
2011
Obiettivo: In questo lavoro intendiamo valutare la qualità della vita e il grado di distress dei caregiver di pazienti affetti da demenza afferenti presso il Centro di Riferimento Regionale Demenze Senili-Alzheimer - Unità Valutativa Alzheimer, dell’A.S.P. di Palermo. Metodi: L’assessment si compone di una batteria testo-logica che comprende i seguenti tests: Relative Stress Scale, Caregivere Burden Inventory, Neuropsychiaric Inventory, Short Form-36 Healty Survey. Risultati: Dall’analisi dei dati emerge che il grado di stress del caregiver risulta proporzionale al numero di anni di accudimento del paziente. Inoltre i caregiver di sesso femminile dedicano un numero sensibilmente maggiore di…
Age-dependency in mortality of Finnish family caregivers: a nationwide register-based study
2020
Abstract Purpose Mortality appears to be lower in family caregivers than in the general population. However, there is lack of knowledge whether the difference in mortality between family caregivers and the general population is dependent on age. The purpose of this study was to analyze all-cause mortality in relation to age in family caregivers and to study their cause-specific mortality using data from multiple Finnish national registers. Methods The data included all individuals, who received family caregiver's allowance in Finland in 2012 (n = 42 256, mean age 67 years, 71% women) and a control population matched for age, sex, and municipality of residence (n = 83 618). Information on da…
'I had to help my child!': The role of emotions, risk, and trust in use of nasal decongestants in children.
2013
Recent studies suggest that a number of common cold medicines, including nasal decongestants are not suitable for small children. In Latvia nasal decongestants are primarily over-the-counter (OTC) medicines, and patient information leaflets generally permit use of these medicines for small children. The previous studies in Latvia investigating the use of medicines in cases of common cold demonstrated extensive use of decongestants in children less than six years of age, marking a necessity for more profound research. As a result a qualitative study was implemented in 2011 to identify sources of information that offer advice for the use of decongestants in children. The caregivers’ percepti…
[Recommendations for end-of-life care in patients with chronic obstructive pulmonary disease].
2009
Over the last 20 years, advances in the treatment of patients with chronic obstructive pulmonary disease (COPD) have improved survival even among patients in the most advanced stages of the disease, such as those requiring domiciliary oxygen therapy.1,2 This improvement—in principle a positive development—has given rise to considerable clinical problems associated with the establishment of a therapeutic ceiling and the difficulty of determining prognosis in some of these patients. In this situation, the clinician should consider introducing palliative care, that is, care aimed at improving symptom control, communication, physical activity, and emotional support, in order to achieve the best…
The pros and cons of the implementation of a chronic care model in European rural primary care: the points of view of European rural general practiti…
2021
Introduction: This article describes the views of European rural general practitioners regarding the strengths, weaknesses, opportunities and threats (SWOT) of the implementation of a chronic care model (CCM) in European rural primary care. Methods: This was a mixed-methods online survey. Data were collected from 227 general practitioners between May and December 2017. Categorical data were analysed using descriptive methods while free-text responses were analysed using qualitative methods. The setting was rural primary care in nine European countries (including Central and Eastern Europe). Main outcomes measures were respondents' evaluations of a chronic care model in their rural heal…
Reliability and validity of the Home Care STAT (Safety Task Assessment Tool).
2013
Abstract Home care workers are a priority population for ergonomic assessment and intervention, but research on caregivers' exposures to hazards is limited. The current project evaluated the reliability and validity of an ergonomic self-assessment tool called Home Care STAT (Safety Task Assessment Tool). Participants (N = 23) completed a background survey followed by 10–14 days of self-monitoring with the STAT. Results showed that the most frequent task was house cleaning, and that participants regularly performed dangerous manual client moving and transferring tasks. Researcher in-home observations of 14 workers (duration ≤2 h) demonstrated that workers' self-assessments were moderately re…
The care of the informal caregiver's burden by the Spanish public system of social welfare: a review.
2010
Abstract This work analyzes the public social services system developed in Spain to attend dependent persons and their informal caregivers, examining in a more detailed way the current capacity of the Spanish public In-Home Help Service (HHS) to meet the demands of dependent elderly persons and its impact on their informal caregiver's burden. We begin with a brief introduction of the services by the Spanish public social services system developed to attend dependency; next, the evolution of the Spanish public HHS is described in a thorough way to identify the pros and cons of this service regarding the informal caregivers’ burden of dependent elders. Finally, recommendations are proposed to…
A tool to observe the phenomenology and aesthetics of primary relationships: the “dance steps” of reciprocity between caregivers and infant/child – P…
2023
This study addresses the complexity of caregiver-infant/child interactions from the theoretical frame of Gestalt psychotherapy and the field of application of Pediatric Psychology. Based on a previous empirical study on the process of reciprocity in caregiver-infant/child interactions (Spagnuolo Lobb, 2016), the authors have worked on the construction of an observational tool to look at the co-creation of meaningful experiences, switching the focus from the child to the “dance” of reciprocity between caregiver and infant/child. Considering the contextualization in the field of Pediatric Psychology, this pilot study aimed to test the tool’s application with caregiverpreterm infant dyads, but…