Search results for "AREG"
showing 10 items of 254 documents
Caring for People With Dementia Under COVID-19 Restrictions: A Pilot Study on Family Caregivers
2021
IntroductionThe present pilot study examined to what extent the COVID-19 lockdown affected the behavioral and psychological symptoms of dementia (BPSD) in people with dementia and worsened their family caregivers’ distress. The associations between changes in the BPSD of relatives with dementia (RwD) and in their caregivers’ distress, and sense of social and emotional loneliness, and resilience were also investigated.Materials and MethodsThirty-five caregivers of RwD attending formal healthcare services before the COVID-19 lockdown volunteered for the study, and were interviewed by phone during the lockdown. Caregivers completed the NeuroPsychiatric Inventory (NPI) to assess their care reci…
A review of programs to alleviate the burden of informal caregivers of dependent persons.
2010
The review of interventions currently available to alleviate the burden of informal caregivers of dependent persons has both social and political relevance considering the increasing number of elderly dependent persons. Respite services and programs for psycho-social intervention are the main methods of dealing with this burden. Study of the main research carried out to date on such interventions enables us to organize more efficient services, especially considering the enactment of the Law on Dependence in Spain in January 2007 and the need for other European and international governments to establish systems to meet the needs of the growing dependent population.
Being the Family Caregiver of a Patient With Dementia During the Coronavirus Disease 2019 Lockdown
2021
Background: Family caregivers of patients with dementia are at high risk of stress and burden, and quarantine due to the coronavirus disease 2019 (COVID-19) pandemic may have increased the risk of psychological disturbances in this population. The current study was carried out during the national lockdown declared in March 2020 by the Italian government as a containment measure of the first wave of the coronavirus pandemic and is the first nationwide survey on the impact of COVID-19 lockdown on the mental health of dementia informal caregivers.Methods: Eighty-seven dementia centers evenly distributed on the Italian territory enrolled 4,710 caregiver–patient pairs. Caregivers underwent a tel…
La formazione del caregiver: un’indagine esplorativa sui bisogni e le competenze di chi si prende cura
2021
In Italy, most people with dementia are looked after by an informal caregiver and, due to the care burden and the lack of systematic-institutional support, they risk deleterious effects on psycho-physical well-being and on relational functionality with the assisted. Considering the ontological dimension of care, it is necessary to deepen the pedagogical implications deriving from the needs of the caregiver of people with Alzheimer Disease. The survey carried out based on the administration of two tools: the semi-structured interview addressed to the associations that in the Sicilian territory deal with family support and the check-list for conducting focus groups with cargivers, allowed the…
Alexithymia, burden and resilience in ALS’ caregivers
2017
Living with a progressively disease such as Amyotrophic lateral sclerosis (ALS) has a strong impact on the people affected and on their relatives, who have to tackle the demanding duties of caring for and assisting them (Tramonti et al., 2014). Many factors modulate the levels of burden in ALS’ caregivers: disease related factors, personality related factors, enviromental factors. Dennison et al (2001) showed that alexithymia could to contribute to increasing distress in ALS’ caregivers, but there are very few studies on this. Other studies supporting the role of resilience such as protective factor (Ripamonti, 2015). The aim of the study is to assess the relationship between alexithymia, r…
La costruzione narrativa del prendersi cura dell'altro. Analisi qualitativa di un dispositivo gruppale di caregiver di pazienti affetti da patologie …
Gran parte della letteratura sui caregiver di persone affette da patologie cronico-degenerative è centrata sulla valutazione delle ripercussioni negative dell’attività di cura sullo stato di salute e sulle condizioni di vita; inoltre i discorsi culturalmente veicolati intorno alle patologie dementigene tendenzialmente condividono un linguaggio negativo, omogeneo, costruito attorno ai significati di perdita, dipendenza, devastazione. Partendo da queste premesse la presente ricerca, facente riferimento ad uno studio esplorativo basato sull’analisi qualitativa di un single case, si propone di osservare, in ottica costruzionista, l’esperienza di malattia vissuta dai caregiver nella loro relazio…
Anticipated Grief in Relatives of People with Alzheimer's Disease: Discourse Analysis
2021
Resumen La enfermedad de Alzheimer (EA) es la demencia más frecuente, considerada un proceso crónico e incurable. Los cuidadores de personas con EA pueden experimentar duelo anticipado. El objetivo fue observar el desarrollo de duelo anticipado en familiares de personas con EA. Participaron 10 cuidadores familiares de personas con EA en estado moderado o avanzado (70 % mujeres), de entre 18 y 80 años. Respondieron una entrevista semiestructurada (sentimientos, reconocimiento de la muerte, reorganización familiar, esperanza, facilitación o resistencia a la muerte y aproximación o distanciamiento del familiar). Se empleó la técnica del análisis cualitativo del contenido empleando la triangula…
Anàlisi sobre el perfil i situació dels cuidadors (formals i familiars) de les persones que pateixen Alzheimer, en la zona de la Vall d'Albaida
2013
The Alzheimer’s disease is nowadays known all around the world, however not everybody is aware of the aftermath that this disease produces in those who suffer it directly and indirectly. There is even less awareness of the importance of providing care to those who give care. Therefore I decided to conduct a little research to know the profile of people with Alzheimer and their caregivers residing in the Vall d’Albaida area (Valencia, Spain) and to analyze the services that are provided to them in order to detect whether they are sufficient or they could be improved. The results of the research are shown below; however I would like to “disclose” that it is necessary to get a greater involvem…
Outcome and attitudes toward home tracheostomy ventilation of consecutive patients: a 10-year experience.
2008
Summary Objectives To describe survival, predictors of long-term outcome and attitudes in patients treated at home by tracheostomy-intermittent positive-pressure ventilation (TIPPV) for respiratory failure during a 10-year period (1995–2004). Methods Seventy-seven consecutive patients were treated by TIPPV at home. Patients were divided into three groups: neuromuscular, pulmonary, and non-pulmonary patients. Effects of TIPPV on survival, factors influencing outcome after TIPPV, and attitudes of patients and caregivers regarding mechanical ventilation were studied. Results Forty-one patients (53%) were neuromuscular, 19 (25%) were affected by pulmonary diseases, and 17 (22%) by non-pulmonary…
Stressed caregivers. An observational study in a rehabilitation care home in western Sicily
2019
Introduction: Caregiver is the person who takes care of the patient from the practical point of view, helping him in managing the disease and carrying out daily activities, but also supporting him on an emotional level. Caregiver burnout is a state of physical, emotional, and mental exhaustion that may be accompanied by a change in attitude from positive and caring to negative and unconcerned. The aim of the study was to understand what factors were associated with having panic attacks or crying crises in the caregivers of our study population. Materials and methods: The study design is observational. An anonymous questionnaire was administered to caregivers of the patients of a hospital fo…