Search results for "Caregivers"
showing 8 items of 198 documents
The Burden Endured by Caregivers of Patients With Morquio A Syndrome: Results From an International Patient-Reported Outcomes Survey
2019
Abstract This international survey performed by direct personal interview or mail evaluated the global burden among primary caregivers of patients with Morquio A syndrome. Collected outcomes included self-reported time spent on caregiving, proportion of daily activities (from the Mucopolysaccharidosis Health Assessment Questionnaire) requiring caregiver assistance, and how the patient’s age and wheelchair use affect these. In addition, the impact of caregiving on the caregivers’ relationship with family and friends, physical and mental health, and employment status and income was evaluated. Caregiver burden increased with disease progression. Adult patients always using a wheelchair require…
Design and validation of appearance and content of an oral health questionnaire for parents or caregivers of children with cerebral palsy
2018
Introduction: Cerebral palsy is a syndrome that involves a large number of childhood movement and posture disorders, resulting in activity limitation. It is attributed to non-progressive alterations in the fetal or infant brain. This disorder can also be accompanied by oral alterations, some of which can be prevented if the caretaker knows how to manage them. An adequate knowledge of oral health on the part of the caregivers has a positive impact on the oral status of their patients. Objective: To design and validate a questionnaire to assess the oral health knowledge of caregivers of children with cerebral palsy. Methods: A literature search was conducted to identify published questionnair…
Experiences of people with memory disorders and their spouse carers on influencing formal care: “They ask my wife questions that they should ask me”
2021
Background People with memory disorders often need care and help from family carers and health and social care providers. Due to the deterioration of cognitive capacity and language skills, they may be unable to convey their thoughts and care preferences to other people. As a result, their agency may become restricted. We investigated the descriptions provided by people with memory disorders and spousal carers of their influence on care in encounters with formal care providers. Methods Qualitative thematic analysis was used to identify, analyze, and report themes that describe encounters with professionals in different social or healthcare environments. In-depth interview data were gathered…
Caregiving Role and Psychosocial and Individual Factors: A Systematic Review
2021
Emotional intelligence (EI) refers to the ability to perceive, express, understand, and manage emotions. Current research indicates that it may protect against the emotional burden experienced in certain professions. This article aims to provide an updated systematic review of existing instruments to assess EI in professionals, focusing on the description of their characteristics as well as their psychometric properties (reliability and validity). A literature search was conducted in Web of Science (WoS). A total of 2761 items met the eligibility criteria, from which a total of 40 different instruments were extracted and analysed. Most were based on three main models (i.e., skill-based, tra…
SOIGNER AUX FRONTIÈRES : REGARD PSYCHODYNAMIQUE SUR LE QUOTIDIEN TRAUMATIQUE DES SOIGNANTS/RÉFUGIÉS
2017
Les soignants d’hôpitaux habitant et travaillant aux frontières turco-syriennes sont aussi des migrants ou des réfugiés syriens. Comme la population sinistrée, ils exercent leur activité professionnelle au rythme de la guerre et nécessitent également un accompagnement. Dans le cadre de l’Unité psychosociale d’une ONG internationale, un soutien psychologique en visio-conférence est proposé aux soignants en Syrie et en Turquie. Cet article propose un commentaire et une réflexion clinique sur le quotidien de ces soignants, leur santé mentale, ainsi que sur leurs mécanismes de survie psychiques, groupaux et culturels. Quatre vignettes cliniques sont commentées et discutées pour comprendre la co…
Efficacy of “Family Connections”, a program for relatives of people with borderline personality disorder, in the Spanish population: study protocol f…
2020
Abstract Background Patients with borderline personality disorder (BPD) experience significant affect regulation difficulties that cause serious consequences in their work, emotional, and social environments. This dysfunctional pattern also produces great suffering and a heavy burden on their relatives. Fortunately, some studies show that treatment of relatives of people with BPD begins to be important in the patients’ recovery and in improving family dynamics. One of the treatments that has obtained the most empirical support is Family connections (FC). This 12-session program is an adaptation of different Dialectical Behavior Therapy strategies. To test the efficacy of FC, five uncontroll…
COPE-indeksillä mitatun omaishoitajan kuormittumisen tilan yhteys omaishoidettavan käyttämien sijaishoitopalveluiden määrään ja käytön useuteen
2013
On olemassa vahva yhteisymmärrys siitä, että ikääntyneen henkilön omaishoitaminen voi olla kuormittavaa. Omaishoitoa tuetaan erilaisilla sijaishoitopalveluilla. Niiden vaikutuksista omaishoitajien kuormittumiseen ei kuitenkaan olla yksimielisiä. Sijaishoitopalveluiden käyttömäärissä ja käytön useudessa on suuria vaihteluja omaishoidettavien välillä. Tämän tutkimuksen tarkoituksena on selvittää COPE-indeksiä (Carers of Older People in Europe, COPE index) apuna käyttäen, minkälainen on omaishoitajien kuormittumisen tila Jämsä-Kuhmoinen SoTe-yhteistoiminta-alueella. Lisäksi tutkimuksessa selvitetään, onko omaishoitajien kuormittumisen tila yhteydessä omaishoidettavan käyttämien sijaishoitopalv…
Assessment of Burden Among Family Caregivers of Schizophrenia: Psychometric Testing for Short-Form Zarit Burden Interviews
2018
Objective: Although various short forms of Zarit Burden Interview (ZBI) have been developed, there is a lack of standard psychometric testing and comparison among them. The study aims to examine the psychometric properties of ten short versions of the most frequently used ZBI among a sample of schizophrenia caregivers and to find the one with the best performance.Methods: Cross-sectional door-to-door survey of ZBI-22 and a series of validated instrument data from 327 family caregivers of schizophrenia patients in a Chinese rural community were conducted from October 2015 to January 2016. Reliability was assessed using McDonald's omega coefficient (ω). Validity including concurrent validity,…