Search results for "Data sharing"
showing 10 items of 28 documents
Making sense of big data in health research: {T}owards an {EU} action plan
2016
Genome medicine 8(1), 71 (2016). doi:10.1186/s13073-016-0323-y
Retract p < 0.005 and propose using JASP, instead
2018
Seeking to address the lack of research reproducibility in science, including psychology and the life sciences, a pragmatic solution has been raised recently: to use a stricter p < 0.005 standard for statistical significance when claiming evidence of new discoveries. Notwithstanding its potential impact, the proposal has motivated a large mass of authors to dispute it from different philosophical and methodological angles. This article reflects on the original argument and the consequent counterarguments, and concludes with a simpler and better-suited alternative that the authors of the proposal knew about and, perhaps, should have made from their Jeffresian perspective: to use a Bayes …
Further delineation of a rare recessive encephalomyopathy linked to mutations in GFER thanks to data sharing of whole exome sequencing data
2017
Background Alterations in GFER gene have been associated with progressive mitochondrial myopathy, congenital cataracts, hearing loss, developmental delay, lactic acidosis and respiratory chain deficiency in 3 siblings born to consanguineous Moroccan parents by homozygosity mapping and candidate gene approach (OMIM#613076). Next generation sequencing recently confirmed this association by the finding of compound heterozygous variants in 19-year-old girl with a strikingly similar phenotype, but this ultra-rare entity remains however unknown from most of the scientific community. Materials and methods Whole exome sequencing was performed as part of a "diagnostic odyssey" for suspected mitochon…
Open availability of articles and raw research data in spanish pediatrics journals
2015
[EN]: Introduction: The open Access to publications and the raw data allows its re-use and enhances the advancement of science. The aim of this paper is to identify these practices in Spanish pediatrics journals. Method: We reviewed the author's instructions in 13 Spanish pediatrics journals, identifyingtheir open access and deposit policy. Results: Eight journals allow open access without restriction, and 5 provide information on theability to re-use and depositing data in repositories or websites. Conclusions: Most of the journals have open access, but do not promote the deposit of additionalmaterial or articles in repositories or websites.
CoCoDat: a database system for organizing and selecting quantitative data on single neurons and neuronal microcircuitry.
2004
We present a novel database system for organizing and selecting quantitative experimental data on single neurons and neuronal microcircuitry that has proven useful for reference-keeping, experimental planning and computational modelling. Building on our previous experience with large neuroscientific databases, the system takes into account the diversity and method-dependence of single cell and microcircuitry data and provides tools for entering and retrieving published data without a priori interpretation or summarizing. Data representation is based on the framework suggested by biophysical theory and enables flexible combinations of data on membrane conductances, ionic and synaptic current…
Reproducible research practices, openness and transparency in health economic evaluations: study protocol for a cross-sectional comparative analysis
2020
INTRODUCTION: There has been a growing awareness of the need for rigorously and transparent reported health research, to ensure the reproducibility of studies by future researchers. Health economic evaluations, the comparative analysis of alternative interventions in terms of their costs and consequences, have been promoted as an important tool to inform decision-making. The objective of this study will be to investigate the extent to which articles of economic evaluations of healthcare interventions indexed in MEDLINE incorporate research practices that promote transparency, openness and reproducibility. METHODS AND ANALYSIS: This is the study protocol for a cross-sectional comparative ana…
The Rise of Distributed Artificial Intelligence Through Shared Data and Cloud Solutions
2021
Decision-makers of present times encounter influence by an ever-increasing emotional condition created by social media, market trends, experience, and historical facts. The concept of mixed human and artificial intelligence is one of the most underrated business drivers today, and conspiracy theories, fixed mindset, and legacy systems are slowing down collective evolution. This paper intends to contribute to the everyday awareness of data sharing through cloud solutions and services. It opens a wide range of possibilities for new solutions and insights that endorse a collaborative culture where a growth mindset paired with transparency and ethics reduces time-to-value in businesses, governm…
VegItaly: Technical features, crucial issues and some solutions
2012
VegItaly is at present the largest Italian vegetation database. It is the result of a collaborative project aspiring to represent a major reference for the Italian vegetation scientists. The paper emphasizes its benefits for phytosociological data management and describes the solutions adopted to solve several technical problems, like the treatment of different vegetation stratification systems, the conversion of vegetation cover values, taxonomic and syntaxonomic issues, data import and access. The structure of the taxonomic list produced to support the storing of data is described. It allows an easy management of synonymic relationships and is constantly updated according to new publicati…
A gap analysis of Internet-of-Things platforms
2016
We are experiencing an abundance of Internet-of-Things (IoT) middleware solutions that provide connectivity for sensors and actuators to the Internet. To gain a widespread adoption, these middleware solutions, referred to as platforms, have to meet the expectations of different players in the IoT ecosystem, including device providers, application developers, and end-users, among others. In this article, we evaluate a representative sample of these platforms, both proprietary and open-source, on the basis of their ability to meet the expectations of different IoT users. The evaluation is thus more focused on how ready and usable these platforms are for IoT ecosystem players, rather than on t…
A Proposed Access Control-Based Privacy Preservation Model to Share Healthcare Data in Cloud
2020
Healthcare data in cloud computing facilitates the treatment of patients efficiently by sharing information about personal health data between the healthcare providers for medical consultation. Furthermore, retaining the confidentiality of data and patients' identity is a another challenging task. This paper presents the concept of an access control-based (AC) privacy preservation model for the mutual authentication of users and data owners in the proposed digital system. The proposed model offers a high-security guarantee and high efficiency. The proposed digital system consists of four different entities, user, data owner, cloud server, and key generation center (KGC). This approach makes…