Search results for "INFORMAL CARE"

The experiences of older individuals providing care to older dependents: A phenomenological study in Spain

2021

Objective Non-professional care provided in domestic settings by a family member or someone from the close environment and without a connection to a professional care service, is increasingly assumed by older people, mainly the spouses of those requiring care. The aim of this study was to describe the experience of older people providing care at home to older dependents. Methods A qualitative study was carried out to describe and explore the experience of older people, caregivers of dependent older people in the home. Results Four themes emerged as a result of the analysis: interpersonal relationships established in the caregivers’ immediate environment; the need and request for public and…

Use of antidepressants among Finnish family caregivers : a nationwide register-based study

2021

Abstract Purpose The purpose of this study was to compare the use of antidepressants over 6 years between family caregivers providing high-intensity care and a matched control population using register-based data. Methods The study includes all individuals, who received family caregiver’s allowance in Finland in 2012 (n = 29,846 females, mean age 66 years; n = 12,410 males, mean age 71 years) and a control population matched for age, sex, and municipality of residence (n = 59,141 females; n = 24,477 males). Information on purchases of antidepressants, including the number of defined daily doses (DDD) purchased, between 2012 and 2017 was obtained from the national drugs reimbursement registe…

Innovating European Long-Term Care Policies through the Socio-Economic Support of Families: A Lesson from Practices

2022

LTC and socio-economic deprivation of families are two relevant issues in international debate. The economic or time investment made by families in caregiving has an impact on the socio-economic status of family members in terms of economic means and social inclusion. This study analyzes the practices that are supported by home LTC, examining their characteristics, identifying their strengths, weaknesses, drivers, and barriers, as well as identifying social innovation aspects. The study provides a qualitative interpretative comparison of 22 practices from eight countries, representing the four LTC care models existing in Europe. Cross-studies aid in the development of sustainable policies. …

Informal caregiving burden in advanced non-small cell lung cancer: the HABIT study.

2007

Introduction This study's aim was to assess economic data regarding the home assistance burden for advanced non-small cell lung cancer (NSCLC) patients in Italy. Patients and Methods One hundred four NSCLC patients in second-line chemotherapy (2LC) or in supportive therapy (ST) were enrolled in 18 Italian oncology departments and were observed for 3 months. The main caregiver's workload was assessed monthly by a task scale; other caregivers' activities were also registered. Eastern Cooperative Oncology Group performance status was assessed by physicians, and patients completed the Lung Cancer Symptoms (LCS) subscale. Formal caregiving time was valued according to market prices; informal car…

Distances and proximities of care : Analysing emotio-spatial distances in informal caring

2018

This article analyses how emotio-spatial distances in informal caring are experienced by Finnish women who are employed and simultaneously caring for an ageing relative. The article's research questions are: how do spatial distance and proximity shape informal carers' emotional responses to caring? What kinds of emotion do spatial ‘distance’ or ‘proximity’ evoke in the interview accounts of informal carers? The article draws on theorisations regarding emotional geographies of care. The data consists of two focus group interviews with a total of 12 women who were combining employment with caring. The analysis shows that spatially proximate carers have difficulty detaching from caring, wherea…

L'aide à un parent âgé, seul et dépendant : déterminants structurels et interactions

2016

With population ageing, the demand for home care of the disabled elderly is increasing and a large part of care is provided by informal caregivers. This paper focuses on the determinants of care provision by children to an old, single and disabled parent. We focus on two-child families and apply a semi-structural methodology, already implemented on European data (survey SHARE). It makes it possible to distinguish between two types of determinants: structural determinants (individual, parental and family characteristics) and interactions (effect of the care provision of one child on the care provision of the other). The estimation of this model on data of the French survey "Handicap Santé Mé…

People with memory illnesses and their spouses as actors in the hybrid care model

2023

Objective: The study analysed how its participants positioned themselves and other people as actors in daily life, and what matters they portrayed as meaningful in seeking and receiving support in daily life. Background: Family care has traditionally played an important role in elder care in Finland. Current policy goals will further increase the importance of family care, yet research on how people with memory illnesses and their spouses perceive care arrangements is scarce. Method: The study drew from theory of relational agency and positioning theory. The data came from semi-structured, in-depth interviews (10) of home-dwelling people diagnosed with a memory illness and their spouses. Th…

Keski-ikäiset ikääntyvien omaistensa auttajina? : tutkimus sukupolvien välisestä informaalista hoivasta

2012

Experiences of people with memory disorders and their spouse carers on influencing formal care: “They ask my wife questions that they should ask me”

2021

Background People with memory disorders often need care and help from family carers and health and social care providers. Due to the deterioration of cognitive capacity and language skills, they may be unable to convey their thoughts and care preferences to other people. As a result, their agency may become restricted. We investigated the descriptions provided by people with memory disorders and spousal carers of their influence on care in encounters with formal care providers. Methods Qualitative thematic analysis was used to identify, analyze, and report themes that describe encounters with professionals in different social or healthcare environments. In-depth interview data were gathered…

Unmet care needs are common among community-dwelling older people with memory problems in Finland

2021

Aims: Ageing in place has become a policy priority. Consequently, residential care has been reduced, and more older people with multiple care needs reside at home with the help of informal care and home care services. An increasing share of these people has memory disorders. We examined the extent to which memory problems, in addition to other individual characteristics, are associated with unmet care needs among community-dwelling older people. Methods: The study employed cross-sectional survey data from community-dwelling people aged 75+ collected in 2010 and 2015, analysed using binary logistic regression analysis. The study population consisted of people who had long-term illnesses or d…