Search results for "PROMs"

showing 4 items of 4 documents

Management goals for type 1 Gaucher disease: An expert consensus document from the European working group on Gaucher disease

2018

Gaucher Disease type 1 (GD1) is a lysosomal disorder that affects many systems. Therapy improves the principal manifestations of the condition and, as a consequence, many patients show a modified phenotype which reflects manifestations of their disease that are refractory to treatment. More generally, it is increasingly recognised that information as to how a patient feels and functions [obtained by patient- reported outcome measurements (PROMs)] is critical to any comprehensive evaluation of treatment. A new set of management goals for GD1 in which both trends are reflected is needed. To this end, a modified Delphi procedure among 25 experts was performed. Based on a literature review and …

0301 basic medicinemedicine.medical_specialtyConsensusDelphi study; Gaucher disease; Management goals; PROMs; TherapyDelphi methodEarly detectionGaucher diseaseDiseasePROMs03 medical and health sciences0302 clinical medicineQuality of life (healthcare)HumansMedicineIntensive care medicineSet (psychology)Molecular BiologyComputingMilieux_MISCELLANEOUSManagement goalsbusiness.industryDisease ManagementType 1 Gaucher DiseaseExpert consensus[SDV.MHEP.HEM]Life Sciences [q-bio]/Human health and pathology/HematologyCell BiologyHematologySocial engagementDelphi study3. Good healthEurope030104 developmental biology030220 oncology & carcinogenesisQuality of LifePhysical therapyMolecular MedicineTherapybusinessBlood Cells, Molecules, and Diseases
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Systematic review of the health-related quality of life issues facing adolescents and young adults with cancer

2017

Contains fulltext : 174665.pdf (Publisher’s version ) (Open Access) PURPOSE: For adolescents and young adults (AYAs), the impact of a cancer diagnosis and subsequent treatment is likely to be distinct from other age groups given the unique and complex psychosocial challenges of this developmental phase. In this review of the literature, we report the health-related quality of life (HRQoL) issues experienced by AYAs diagnosed with cancer and undergoing treatment. METHODS: MEDLINE, EMBASE, CINAHL, PsychINFO and the Cochrane Library Databases were searched for publications reporting HRQoL of AYAs. Issues generated from interviews with AYAs or from responses to patient reported outcome measures…

AdultGerontologymedicine.medical_specialtyAdolescentReviewYoung Adult03 medical and health sciences0302 clinical medicineQuality of life (healthcare)Age groupsNeoplasmsmedicinecancerHumansPatient reported outcome measures (PROMs)Patient Reported Outcome Measures030212 general & internal medicineYoung adultPsychiatryCancerQuality of Life ResearchHealth related quality of lifebusiness.industryPublic healthPublic Health Environmental and Occupational HealthCancermedicine.diseaseHealth-related quality of life (HRQoL)humanitiesadolescents and young adults (AYAs)030220 oncology & carcinogenesisQuality of LifeAdolescents and young adults (AYAs)health-related quality of life (HRQoL)businessPsychosocialpatient reported outcome measures (PROMs)Rare cancers Radboud Institute for Health Sciences [Radboudumc 9]
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Modelling the Reverse ElectroDialysis process with seawater and concentrated brines

2012

Technologies for the exploitation of renewable energies have been dramatically increasing in number, complexity and type of source adopted. Among the others, the use of saline gradient power is one of the latest emerging possibilities, related to the use of the osmotic/chemical potential energy of concentrated saline solutions. Nowadays, the fate of this renewable energy source is intrinsically linked to the development of the pressure retarded osmosis and reverse electrodialysis technologies. In the latter, the different concentrations of two saline solutions is used as a driving force for the direct production of electricity within a stack very similar to the conventional electrodialysis …

Chemical potentialSettore ING-IND/26 - Teoria Dello Sviluppo Dei Processi ChimiciSettore ING-IND/25 - Impianti Chimici020209 energyOcean Engineering02 engineering and technology7. Clean energyModellingSaline gradient powerSaline gradient power; Reverse electrodialysis; Modelling; Multi-scale; gPROMSStack (abstract data type)Reversed electrodialysisReverse electrodialysi0202 electrical engineering electronic engineering information engineeringOsmotic powergPROMSMulti-scaleWater Science and Technologybusiness.industryChemistryPressure-retarded osmosisEnvironmental engineeringElectrodialysis021001 nanoscience & nanotechnologyPollution6. Clean waterRenewable energySeawater0210 nano-technologybusinessDesalination and Water Treatment
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Modelling the transient behaviour of a MED-TVC plant for coupling with CSP

2015

In this paper a dynamic model for the MED-TVC process has been developed and valided by a comparison with data from a real plant situated in Trapani, Italy, composed by 12 effects with parallel-feed configuration and equipped with a medium-pressure steam vapour ejector.

Process modelling gPROMS Dynamic simulation MED TVC CSP Molten salts
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