0000000000243708

AUTHOR

Monika Bullinger

showing 2 related works from this author

Cross-cultural development and psychometric evaluation of a patient-reported health-related quality of life questionnaire for adults with haemophilia.

2008

Co-morbidities of haemophilia, such as arthropathy and blood-borne infections, can adversely affect the quality of life of adult patients with haemophilia. The purpose of this study was to develop and validate a haemophilia-specific health-related quality of life questionnaire for adults (HAEMO-QoL-A). Subjects with varying severities of haemophilia completed the HAEMO-QoL-A at baseline and 4 weeks. Other assessments included the SF-36 and Health Assessment Questionnaire - Functional Disability Index (HAQ-FDI). Two-hundred and twenty-one participants completed the 41-item HAEMO-QoL-A covering six domains (Physical Functioning, Role Functioning, Worry, Consequences of Bleeding, Emotional Imp…

AdultCross-Cultural ComparisonMalemedicine.medical_specialtyActivities of daily livingPsychometricsPsychometricsIntraclass correlationmedia_common.quotation_subjectConcurrent validityHIV InfectionsHaemophiliaHemophilia AYoung AdultQuality of lifeCronbach's alphaActivities of Daily LivingmedicineHumansGenetics (clinical)media_commonbusiness.industryHematologyGeneral MedicineMiddle Agedmedicine.diseasehumanitiesPhysical therapyQuality of LifeWorrybusinessEpidemiologic MethodsAttitude to HealthHaemophilia : the official journal of the World Federation of Hemophilia
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Social support group attendance is related to blood pressure, health behaviours, and quality of life in the Multicenter Lifestyle Demonstration Proje…

2008

Changes in coronary risk factors, health behaviours, and health-related quality of life (HRQOL) were examined by tertiles of social support group attendance in 440 patients (21% females) with coronary artery disease. All patients participated in the Multicenter Lifestyle Demonstration Project (MLDP; eight hospital sites in the USA), an insurance-covered multi-component cardiac prevention program including dietary changes, stress management, exercise and group support for 1 year. Significant improvements in coronary risk factors, health behaviours, and HRQOL were noted at 1 year. Several of these improvements (i.e. systolic blood pressure, health behaviours, HRQOL) were related to social sup…

MaleGerontologyHealth Knowledge Attitudes PracticeStress managementmedicine.medical_specialtymedicine.medical_treatmentHealth BehaviorBlood PressureCoronary DiseaseSupport groupSocial supportQuality of life (healthcare)Risk FactorsSurveys and QuestionnairesAmbulatory CareSecondary PreventionmedicineHumansLife StyleApplied PsychologyAgedbusiness.industryPublic healthAttendanceSocial environmentMiddle AgedPrognosisMental healthSelf-Help GroupsPsychiatry and Mental healthClinical PsychologyQuality of LifePatient ComplianceFemalebusinessFollow-Up StudiesPsychology, Health & Medicine
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