0000000000793797

AUTHOR

Anick N. Baca Yepez

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Development and electronic validation of the revised Cystic Fibrosis Questionnaire (CFQ-R Teen/Adult)

2018

Abstract Background The Cystic Fibrosis Questionnaire-Revised (CFQ-R+14) is a disease-specific, health-related quality of life instrument for cystic fibrosis (CF) patients ≥14years. We have developed a Spanish electronic version of the CFQ-R (e-CFQ-R+14 Spain). Our aim was to compare the paper and electronic versions and to validate the electronic version. Methods Fifty CF patients completed the study. All answered the paper and electronic versions on day 1 and repeated the e-CFQR version 15days later. Results Concordance between the electronic and paper copy versions was high, with correlations above 0.9 in all domains. Test-retest reliability of the e-CFQ-R results was strong, with coeffi…

Pulmonary and Respiratory MedicineHealth related quality of lifemedicine.medical_specialtybusiness.industryConcordancemedicine.diseaseCystic fibrosis03 medical and health sciences0302 clinical medicine030228 respiratory systemQuality of lifePediatrics Perinatology and Child HealthPhysical therapyMedicine030212 general & internal medicinebusinessPsychosocialReliability (statistics)Clinical psychologyJournal of Cystic Fibrosis
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