6533b833fe1ef96bd129b6c9

RESEARCH PRODUCT

Development and electronic validation of the revised Cystic Fibrosis Questionnaire (CFQ-R Teen/Adult)

Vincent G. ValentineDavid HervásInes PérezCasilda OlveiraAlexandra L. QuittnerAnick N. Baca YepezAmparo SoléGabriel Olveira

subject

Pulmonary and Respiratory MedicineHealth related quality of lifemedicine.medical_specialtybusiness.industryConcordancemedicine.diseaseCystic fibrosis03 medical and health sciences0302 clinical medicine030228 respiratory systemQuality of lifePediatrics Perinatology and Child HealthPhysical therapyMedicine030212 general & internal medicinebusinessPsychosocialReliability (statistics)Clinical psychology

description

Abstract Background The Cystic Fibrosis Questionnaire-Revised (CFQ-R+14) is a disease-specific, health-related quality of life instrument for cystic fibrosis (CF) patients ≥14years. We have developed a Spanish electronic version of the CFQ-R (e-CFQ-R+14 Spain). Our aim was to compare the paper and electronic versions and to validate the electronic version. Methods Fifty CF patients completed the study. All answered the paper and electronic versions on day 1 and repeated the e-CFQR version 15days later. Results Concordance between the electronic and paper copy versions was high, with correlations above 0.9 in all domains. Test-retest reliability of the e-CFQ-R results was strong, with coefficients ranging from 0.8 to 0.9. Conclusions The e-CFQ-R version is reliable and valid and can replace the paper copy, thus simplifying the assessment of quality of life. It also provides immediate results with no errors in scoring. It is a useful new tool in CF care.

yearjournalcountryeditionlanguage
2018-09-01Journal of Cystic Fibrosis
https://doi.org/10.1016/j.jcf.2017.10.015