0000000001052332
AUTHOR
S Monti
Development and implementation of the AIDA International Registry for patients with Behçet's disease
AbstractPurpose of the present paper is to point out the design, development and deployment of the AutoInflammatory Disease Alliance (AIDA) International Registry dedicated to pediatric and adult patients with Behçet’s disease (BD). The Registry is a clinical physician-driven non-population- and electronic-based instrument implemented for the retrospective and prospective collection of real-life data about demographics, clinical, therapeutic, laboratory, instrumental and socioeconomic information from BD patients; the Registry is based on the Research Electronic Data Capture (REDCap) tool, which is thought to collect standardised information for clinical real-life research, and has been rea…
The lexicon of community acquis: how to negotiate the non-negotiable
In the context of the activities aimed to improve and develop the integration and cooperation of new Member States together with the states already belonging to the European Community, EU institutions have carried out a number of measures to increase the coherence of the body of common rights and obligations, binding all the Member States of the European Union (community acquis), for a long time. For this reason, the Commission of the European Community began in 2001 a process of consultation and discussion about the way in which problems resulting from the lack of a correspondence between national contract laws (and related terms) belonging to different legal systems should be dealt with a…