0000000001182421

AUTHOR

P Giraldo

showing 2 related works from this author

Management goals for type 1 Gaucher disease: An expert consensus document from the European working group on Gaucher disease

2018

Gaucher Disease type 1 (GD1) is a lysosomal disorder that affects many systems. Therapy improves the principal manifestations of the condition and, as a consequence, many patients show a modified phenotype which reflects manifestations of their disease that are refractory to treatment. More generally, it is increasingly recognised that information as to how a patient feels and functions [obtained by patient- reported outcome measurements (PROMs)] is critical to any comprehensive evaluation of treatment. A new set of management goals for GD1 in which both trends are reflected is needed. To this end, a modified Delphi procedure among 25 experts was performed. Based on a literature review and …

0301 basic medicinemedicine.medical_specialtyConsensusDelphi study; Gaucher disease; Management goals; PROMs; TherapyDelphi methodEarly detectionGaucher diseaseDiseasePROMs03 medical and health sciences0302 clinical medicineQuality of life (healthcare)HumansMedicineIntensive care medicineSet (psychology)Molecular BiologyComputingMilieux_MISCELLANEOUSManagement goalsbusiness.industryDisease ManagementType 1 Gaucher DiseaseExpert consensus[SDV.MHEP.HEM]Life Sciences [q-bio]/Human health and pathology/HematologyCell BiologyHematologySocial engagementDelphi study3. Good healthEurope030104 developmental biology030220 oncology & carcinogenesisQuality of LifePhysical therapyMolecular MedicineTherapybusinessBlood Cells, Molecules, and Diseases
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Survival of European patients diagnosed with lymphoid neoplasms in 2000-2002: results of the HAEMACARE project.

2011

The European Cancer Registry-based project on hematologic malignancies (HAEMACARE), set up to improve the availability and standardization of data on hematologic malignancies in Europe, used the European Cancer Registry-based project on survival and care of cancer patients (EUROCARE-4) database to produce a new grouping of hematologic neoplasma(defined by the International Classification of Diseases for Oncology, Third Edition and the 2001/2008 World Health Organization classifications) for epidemiological and public health purposes. We analyzed survival for lymphoid neoplasms in Europe by disease group, comparing survival between different European regions by age and sex. Design and Method…

MaleLimfomesLymphomaDiseaseLymphoid neolasmas survival0302 clinical medicineEpidemiology80 and overRegistriesChildAged 80 and overLeukemialymphoid neoplasmsIncidenceRegistries/statistics & numerical dataAge FactorsHematologyMiddle Aged3. Good healthEuropeSurvival RateChild Preschool030220 oncology & carcinogenesisFemaleLymphomasLymphoid neolasmas survival; Europe.Adultmedicine.medical_specialtyAdult; Age Factors; Aged; Aged 80 and over; Child; Child Preschool; Europe; Female; Humans; Incidence; Infant; Infant Newborn; Leukemia; Lymphoma; Male; Middle Aged; Registries; Sex Factors; Survival Analysis; Survival Rate; Young AdultNOEurope/epidemiology03 medical and health sciencesYoung AdultSex FactorsInternal medicinemedicineHumansLeukemia/classification/epidemiology/mortalityCancer survival; lymphoid neoplasmsPreschoolSurvival rateSurvival analysisddc:613AgedTumorsbusiness.industryPublic healthInfant NewbornCancerInfantLymphoma/classification/epidemiology/mortalityOriginal Articlesmedicine.diseaseNewbornSurvival AnalysisCancer survivalSurgeryCancer registrybusinessInternational Classification of Diseases for Oncology030215 immunology
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