6533b7d8fe1ef96bd126abee
RESEARCH PRODUCT
French patient-reported experience of diagnosis, management and burden of neuroendocrine tumors
Grace GoldsteinAlexandre SantosJean-philippe MetgesDenis SmithCôme LepageEdward M. WolinRon HollanderRosine GuimbaudChristine Do CaoPhilippe RuszniewskiEric BaudinCatherine Lombard-bohassubject
Economics and EconometricsPediatricsmedicine.medical_specialtybusiness.industryForestryNeuroendocrine tumorsmedicine.disease03 medical and health sciences0302 clinical medicine030220 oncology & carcinogenesisDiagnosis managementMaterials ChemistryMedia TechnologyMedicine030211 gastroenterology & hepatologybusinessdescription
Background: There is a lack of knowledge regarding the experience of patients with neuroendocrine tumors (NET) in France. Materials & methods: A patient survey that captured information on diagnosis, disease impact/management and awareness was conducted. Data of respondents from France were analyzed and compared with US data as a reference. Results: Key topics included delays in diagnosis, negative impact on quality of life, patient access to NET medical experts and treatments, and information on NET and treatments. Significant differences were observed between France and the USA regarding NET diagnosis. Conclusion: This survey highlights the considerable burden experienced by patients in France with NET and differences in patient experience between France and the USA that may result from different healthcare and social systems.
| year | journal | country | edition | language |
|---|---|---|---|---|
| 2020-06-01 | International Journal of Endocrine Oncology |