6533b7dafe1ef96bd126e0e6
RESEARCH PRODUCT
Autistic Adult Health and Professional Perceptions of It: Evidence From the ASDEU Project
Martina MicaiAntonio CiaramellaTommaso SalvittiFrancesca FulceriLaura Maria FattaLuise PoustkaRobert DiehmGeorgi IskrovGeorgi IskrovRumen StefanovRumen StefanovQuentin GuillonBernadette RogéAnthony StainesMary Rose SweeneyAndrew Martin BoilsonThora LeósdóttirEvald SaemundsenIrma MoilanenIrma MoilanenHanna EbelingHanna EbelingAnneli YlihervaAnneli YlihervaMika GisslerMika GisslerMika GisslerTarja ParviainenPekka TaniRafal KawaAstrid VicenteCélia RasgaMagdalena BudişteanuIan DaleCarol PoveyNoelia FloresCristina JenaroMaria Luisa MonroyPatricia García PrimoTony CharmanSusanne CramerChristine Kloster WarbergRicardo Canal-bediaManuel PosadaMaria Luisa ScattoniDiana SchendelDiana SchendelDiana Schendelsubject
INTELLECTUAL DISABILITYAutism Spectrum DisorderRC435-571ServicesUS CHILDREN3124 Neurology and psychiatry0302 clinical medicineHealth careIntellectual disabilityYOUNG-ADULTSadultsSpectrum disorderYoung adult10. No inequalityOriginal Researchmedia_commonPsychiatryCo-occurring Conditions4. Education05 social scienceshealth3. Good healthEuropePsychiatry and Mental healthAutism spectrum disorderHealthPsychology050104 developmental & child psychologymedicine.medical_specialtyservices515 PsychologyAGED 8 YEARSco-occurring conditionsUNITED-STATESEMERGENCY-DEPARTMENT VISITSautism spectrum disorder03 medical and health sciencesautism spectrum disorder adults health co-occurring conditions servicesmedicinemedia_common.cataloged_instanceAdults0501 psychology and cognitive sciencesEuropean unionPsychiatrySPECTRUM DISORDERService (business)business.industryDEVELOPMENTAL-DISABILITIESmedicine.diseaseDISABILITIES MONITORING NETWORKPerturbações do Desenvolvimento Infantil e Saúde MentalAutism[SDV.SPEE]Life Sciences [q-bio]/Santé publique et épidémiologiePSYCHIATRIC COMORBIDITYbusiness030217 neurology & neurosurgerydescription
The Autism Spectrum Disorders in the European Union (ASDEU) survey investigated the knowledge and health service experiences of users and providers to generate new hypotheses and scientific investigations that would contribute to improvement in health care for autistic adults. An online survey designed for autistic adults, carers of autistic adults, and professionals in adult services was translated into 11 languages and distributed electronically by organizations and in-country adult service facilities in 2017; 522 autistic adults, 442 carers, and 113 professionals provided answers to the health questions. Professionals, the majority in non-medical services, appeared to be poorly informed about whether certain co-occurring conditions were more frequent in autistic adults than typical adults-especially some medical conditions, suicide attempts, accidents, and pain. A minority of autistic adults reported preventive health behaviors such as routine health check-ups. The majority of users and providers expressed the desire to make health care services more user-friendly for autistic adults. Among the three groups, <20% of responders knew an organization or clinician which has developed a way to monitor health, and prevent poor health, that works well for adults on the autism spectrum. The results point to means for better management of co-occurring conditions associated with autism in adulthood in order to reduce hospital admissions and potential areas of improvement in health and social services for autistic adults. Specifically, efforts should be focused on (1) professionals' education on risks for co-occurring conditions in autistic adults; (2) promoting preventive health behaviors; (3) making services user-friendly for autistic adults and their families; and (4) encouraging knowledge of good local services. This study was funded by the European Parliament and managed by the European Union, DGSANTE [Ref.: SANCO/2014/C2/035]. The Italian Ministry of Health projects Osservatorio Italiano per il monitoraggio dei disturbi dello spettro autistico (Fasc. 1S49) and I disturbi dello spettro autistico: attività previste dal decreto ministeriale del 30.12.2016 (Fasc. 2S57) granted the contribution of the Italian data. info:eu-repo/semantics/publishedVersion
| year | journal | country | edition | language |
|---|---|---|---|---|
| 2021-05-28 |