La enfermedad de Huntington infantil en la escuela

6533b7dafe1ef96bd126f332

RESEARCH PRODUCT

La enfermedad de Huntington infantil en la escuela

María Fernández Hawrylak Claudia Grau Rubio

subject

educación inclusiva :PEDAGOGÍA [UNESCO]UNESCO::PEDAGOGÍA enfermedad de Huntington juvenil

description

Hemos asumido el reto de dar respuesta a las necesidades socioeducativas y sanitarias derivadas de las Enfermedades Raras debido a que el alumnado con este tipo de enfermedades también constituye un grupo importante de población desde el punto de vista de los servicios sanitarios y socioeducativos. En esta comunicación se describen las secuelas asociadas a la Enfermedad de Huntington Juvenil, las necesidades educativas especiales, y la respuesta educativa adecuada a estas necesidades. Sus síntomas presentan desafíos únicos en los individuos afectados, a las personas que cuidan de ellos y a los diferentes profesionales que los atienden. Sin embargo, aunque la Enfermedad de Huntington Juvenil es rara, muchos de los retos diarios son similares a los de niños que tienen otros trastornos o discapacidades. Esperamos ayudar a las escuelas a tener una mejor comprensión de la variante juvenil de la Enfermedad de Huntington para que puedan ser capaces de apoyar al niño afectado y a sus familias.

year	journal	country	edition	language
2012-01-01

http://hdl.handle.net/10550/40859

PEPhysical Sciences and Engineering
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