6533b7dcfe1ef96bd1272b9b

RESEARCH PRODUCT

Improving the disease awareness: how a communication campaign brings hidradenitis suppurativa to the light

Nicola ArpaiaConcetta PotenzaM.a. MontesuA. GattiS.p. CannavòLuca BianchiGiampiero GirolomoniPaolo DapavoGiuseppe MicaliGabriella FabbrociniG. MalaraG. LemmeM. Teresa FierroMauro AlaibacS. DattoliFranco RongiolettiMassimo DoniniM. CongedoG. StincoIris ZalaudekAntonio CostanzoP. Calzavara PintonMarco SimonacciGiuseppe ArgenzianoPaolo D. PigattoSanto Raffaele MercuriCorrao SalvatoreAngelo PiccirilloA. GalluccioC. CasalegnoA. OffidaniMarco RomanelliK. PerisS. DattolaPaola SavoiaEmilio BertiAndrea ParodiC. Rene GirardelliCaterina FotiS. DeleddaManuela PapiniG. BagnoniGiuseppe ValentiNicola PimpinelliPiergiorgio MalagoliFrancesco CusanoGiovanni PellacaniR. SirnaE. ProvenzanoD. BianchiniAnnalisa PatriziSimone Ribero

subject

AdultMalemedicine.medical_specialtyHealth Knowledge Attitudes PracticeAdolescentdisease awarenessMEDLINEDermatologyDisease.030207 dermatology & venereal diseases03 medical and health sciencesDiagnostic Self EvaluationYoung Adult0302 clinical medicineHealth caremedicineEffective treatmentHumansHidradenitis suppurativa030212 general & internal medicineMass MediaYoung adultIntensive care medicineChildAdolescent; Adult; Aged; Child; Cysts; Diagnostic Self Evaluation; Female; Health Education; Health Knowledge Attitudes Practice; Hidradenitis Suppurativa; Humans; Male; Mass Media; Middle Aged; Social Media; Young Adult; CommunicationHealth EducationAgedPracticebusiness.industryCystsInflammatory skin diseaseHealth KnowledgeCommunicationhidradenitis suppurativadisease awareness communication hidradenitis suppurativaMiddle Agedmedicine.diseaseHidradenitis SuppurativaInfectious DiseasesCystAttitudesHealth educationFemalebusinessSettore MED/35 - MALATTIE CUTANEE E VENEREESocial MediaHuman

description

Background: Hidradenitis suppurativa is an inflammatory skin disease that presents a recurrence of painful and suppurating lesions in the apocrine gland-bearing regions, with a strong impact on the patients’ life quality. Despite its peculiar presentation, early forms are often underestimated by patients and this would inevitably result in late diagnosis and delayed therapy. Objectives: Improved communication around the disease could facilitate self-diagnosis and a quicker response from healthcare practitioners, especially in this moment when we dispose of effective treatment against this disease. Methods: A HS awareness campaign was conducted for 2 years with the help of a media agency and a patients’ association. Results: Results confirm that a better communication has a strong impact on the disease awareness. Conclusions: This paper demonstrates that the more this disease awareness is carried on, the more quick, effective and efficient the patient's management could be.

10.1111/jdv.15828http://hdl.handle.net/10447/401641