6533b825fe1ef96bd128244a

RESEARCH PRODUCT

The Objective and Subjective Caregiving Burden and Caregiving Behaviours of Parents of Adolescents with Anorexia Nervosa

Charlotte RhindLaura SalernoRebecca HibbsNadia MicaliUlrike SchmidtSimon GowersPamela MacdonaldElizabeth GoddardGillian ToddKate TchanturiaGianluca Lo CocoJanet Treasure

subject

AdultMaleParentsParenting/psychologyAdolescentAnorexia Nervosa/psychologycaregiving burdenMothersStressbehavioral disciplines and activitiesanorexia nervosaPsychological/psychologyCaregivers/psychologySurveys and Questionnairesmental disordersAmbulatory CareHumansParent-Child RelationsMaternal BehaviorPaternal Behavioraccommodating and enabling behaviourParentingDepressionMiddle AgedExpressed EmotionClinical PsychologyCaregiversPsychiatry and Mental Healthexpressed emotionFemalecarer skillDepression/psychologyStress PsychologicalParents/psychology

description

Objective: The study aimed to examine caregiving burden and levels of distress, accommodating behaviours, expressed emotion (EE) and carers' skills, in parents of adolescents with anorexia nervosa. Method: A semi-structured interview assessed the objective burden (time spent across caregiving tasks) in parents (n = 196) of adolescents (n = 144) receiving outpatient treatment for anorexia nervosa. Subjective burden (carers' distress), accommodating behaviours, EE and carers' skills were measured by self-report. Results: Mothers, on average, spent 2.5 h/day of care, mainly providing food and emotional support, compared with 1 h/day by fathers. The level of distress and accommodating behaviour was significantly lower in fathers than in mothers. Accommodating behaviours mediated the relationship between objective burden and subjective burden in mothers, whereas EE and carers' skills did not mediate this relationship for either parent. Discussion: The objective burden for most mothers is high. In order to reduce subjective burden, it may be helpful to target accommodating behaviours. Trial Registration: ISRCTN83003225 - Expert Carers Helping Others (ECHO). Copyright © 2016 John Wiley & Sons, Ltd and Eating Disorders Association.

10.1002/erv.2442http://hdl.handle.net/10447/225330