6533b856fe1ef96bd12b320b
RESEARCH PRODUCT
Appraisal of Burden of Caregivers to Chronically Rehabilitated Patients with Spinal Cord Injuries in a Tertiary Neurological Center in Nepal
Giovanni GrassoSuja GurungArzu BajracharyaAvinash MishraNarendra Prasad JoshiMarwin DewanKusum DhamalaKanchan BharatiSunil MunakomiSangam Shresthasubject
medicine.medical_specialtyRehabilitationActivities of daily livingbusiness.industryBurnout syndromemedicine.medical_treatmentmedicine.diseaseSpinal cord03 medical and health sciencesSocial support0302 clinical medicineQuality of life (healthcare)medicine.anatomical_structureHealth caremedicine030212 general & internal medicineCaregiver Spinal Cord Injuries Disability care Disabled patient Emotional drain Healthcare Quality of life Rehabilitation Spinal cord injury Activities of Daily Living Humans Quality of Life Nepal CaregiversIntensive care medicinebusinessSpinal cord injurydescription
The care of a patient with a spinal cord injury is part of healthcare systems. It causes a substantial physical and emotional drain on the caretakers who often are in short supply and thus may lack adequate training, preparation, and support. Long hours of assisting a chronically handicapped patient with activities of daily living and exercises decrease the rehabilitator's quality of life and take a psychological toll that increases a risk of burnout syndrome. The present study found a significant caregiving burden among care providers of chronically dependent patients with spinal cord injuries. Additionally, financial drain escalates the issue in this rather neglected health and quality of life aspect concerning caregivers. For the situation to improve, there must be a paradigm shift in care taking toward the motivative patient's participation in the rehabilitative process. Provisions for social support and educational programs focusing on the patients and their families need to be reappraised.
| year | journal | country | edition | language |
|---|---|---|---|---|
| 2021-01-01 |