6533b85efe1ef96bd12bff7e

RESEARCH PRODUCT

Whole-genome sequencing for TB source investigations : principles of ethical precision public health

Eric T. JuengstP-j. CeyssensVanessa MathysFernando González-candelasW.a. De OnateA. ForierD.g. De ViedmaE. De VosGuido GroenenIñaki ComasConor J. MeehanTim H. HeupinkA. Van Rie

subject

0301 basic medicinePulmonary and Respiratory Medicinemedicine.medical_specialtymedia_common.quotation_subjectInternet privacyDisease OutbreaksBlame03 medical and health sciences0302 clinical medicineMedicineHumans030212 general & internal medicinehealth care economics and organizationsmedia_commonCommunity engagementDistrustWhole Genome Sequencingbusiness.industryPublic healthAdministrative PersonnelMycobacterium tuberculosisTransparency (behavior)Information sensitivity030104 developmental biologyInfectious DiseasesHarmRight to knowPublic HealthHuman medicinebusiness

description

[Background]: Whole-genome sequencing (WGS) of Mycobacterium tuberculosis allows rapid, accurate inferences about the sources, location and timing of transmission. However, in an era of heightened concern for personal privacy and science distrust, such inferences could result in unintended harm and undermine the public's trust.

10.5588/ijtld.20.0886