Search results for " caregivers"
showing 10 items of 68 documents
Caring for People With Dementia Under COVID-19 Restrictions: A Pilot Study on Family Caregivers
2021
IntroductionThe present pilot study examined to what extent the COVID-19 lockdown affected the behavioral and psychological symptoms of dementia (BPSD) in people with dementia and worsened their family caregivers’ distress. The associations between changes in the BPSD of relatives with dementia (RwD) and in their caregivers’ distress, and sense of social and emotional loneliness, and resilience were also investigated.Materials and MethodsThirty-five caregivers of RwD attending formal healthcare services before the COVID-19 lockdown volunteered for the study, and were interviewed by phone during the lockdown. Caregivers completed the NeuroPsychiatric Inventory (NPI) to assess their care reci…
Being the Family Caregiver of a Patient With Dementia During the Coronavirus Disease 2019 Lockdown
2021
Background: Family caregivers of patients with dementia are at high risk of stress and burden, and quarantine due to the coronavirus disease 2019 (COVID-19) pandemic may have increased the risk of psychological disturbances in this population. The current study was carried out during the national lockdown declared in March 2020 by the Italian government as a containment measure of the first wave of the coronavirus pandemic and is the first nationwide survey on the impact of COVID-19 lockdown on the mental health of dementia informal caregivers.Methods: Eighty-seven dementia centers evenly distributed on the Italian territory enrolled 4,710 caregiver–patient pairs. Caregivers underwent a tel…
Anticipated Grief in Relatives of People with Alzheimer's Disease: Discourse Analysis
2021
Resumen La enfermedad de Alzheimer (EA) es la demencia más frecuente, considerada un proceso crónico e incurable. Los cuidadores de personas con EA pueden experimentar duelo anticipado. El objetivo fue observar el desarrollo de duelo anticipado en familiares de personas con EA. Participaron 10 cuidadores familiares de personas con EA en estado moderado o avanzado (70 % mujeres), de entre 18 y 80 años. Respondieron una entrevista semiestructurada (sentimientos, reconocimiento de la muerte, reorganización familiar, esperanza, facilitación o resistencia a la muerte y aproximación o distanciamiento del familiar). Se empleó la técnica del análisis cualitativo del contenido empleando la triangula…
Impact biopsychosocial de la charge des aidants : pourquoi faut-il porter une attention spécifique envers la santé des aidants ?
2018
There are 11 million family caregivers in France and some estimates indicate that there will be 17 million in 2020. Caregiving is a source of chronic stress that requires adaptation and coping strategies. Caregiving may benefit the health of a caregiver with a positive coping style and altruistic goals. However, the caregiver's burden is frequently associated with negative effects in terms of biopsychosocial imbalance and medical conditions, with frequent anxiety and depression. The management of the caregiving burden starts with the recognition of health professionals - caregivers may benefit from consultation-liaison psychiatry and multidisciplinary medico-social strategies, in addition t…
Defence strategies in an online community of caregivers
2021
Purpose The purpose of this paper is to understand caregivers’ discursive constructions and responses to their unwanted (family and social) role as resulting in exchanges on social media. Online group platforms are understood as particularly suitable for the expression of intimate feelings among adults, for meeting and exhibiting stigma issues, and for the circulation of information and support (Suler, 2004; McCormack, 2010; Pounds et al., 2018). Design/methodology/approach This paper draws from digital Conversation Analysis (Giles et al., 2015), and considers data after combining quantitative (corpus analysis) and qualitative methods, from a critical discourse analysis perspective. The St…
Italian Frontotemporal Dementia Network (FTD Group-SINDEM): sharing clinical and diagnostic procedures in Frontotemporal Dementia in Italy.
2014
In the prospect of improved disease management and future clinical trials in Frontotemporal Dementia, it is desirable to share common diagnostic procedures. To this aim, the Italian FTD Network, under the aegis of the Italian Neurological Society for Dementia, has been established. Currently, 85 Italian Centers involved in dementia care are part of the network. Each Center completed a questionnaire on the local clinical procedures, focused on (1) clinical assessment, (2) use of neuroimaging and genetics; (3) support for patients and caregivers; (4) an opinion about the prevalence of FTD. The analyses of the results documented a comprehensive clinical and instrumental approach to FTD patient…
Benefits of a support programme for family caregivers of patients at the end of life: A randomised controlled trial.
2020
This study aims to analyse the impact that a psychological intervention programme has on the emotional state of family caregivers of patients at the end of life. The study is longitudinal with two arms (control and experimental). Data was collected from 154 primary family caregivers of patients at the end of life as well as from their respective 154 care-recipients. The intervention programme has shown its effectiveness in reducing anxiety, emotional distress and burden in the family caregivers of end-of-life patients. A reduction of anxiety of patients whose family caregivers participated in the intervention was also observed.
Patient and Family Caregivers Neuroticism and Conscientiousness Personality in Relation to Quality of Life of Patient With Parkinsons Disease: A Cros…
2018
Background: Personality impacts life expectancy and comprehensive treatment efficacy for patients with Parkinson's disease (PD). However, current research fails to involve the family caregiver's personality despite significant external support provided by family caregivers. This study explored neuroticism and conscientiousness personality factors of the patient and family caregiver associated with quality of life (QoL) of PD patients. Methods: 134 couples of patients presenting with PD and their family caregivers that met inclusion criteria, were recruited for this cross-sectional study at Shanghai Tenth People's Hospital from October 2015 to 2017. The Parkinson's Disease Questionnaire-39 I…
Vissuti emotivi e bisogni non soddisfatti nei caregivers familiari di soggetti con disturbo del comportamento alimentare.
2013
Introduzione ed obiettivi: Nella ricerca clinica, il termine carer viene utilizzato per riferirsi a quelle persone direttamente coinvolte o con un ruolo significativo nella vita di un soggetto con un disturbo mentale. Finora è stata condotta poca ricerca sulla specificità dei caregivers di pazienti con disturbi alimentari. I disturbi del comportamento alimentare (ED) pongono diverse sfide ai caregivers, come la mancanza di informazioni, scarso supporto sociale e comprensione, burden psicologico. Questo studio esplorativo di tipo cross-sectional si focalizza sui bisogni psicologici e sull’esperienza di assistenza dei carers di pazienti con un disturbo alimentare, con l’obiettivo di esplorare…
Work incapacity among family caregivers : a record linkage study
2022
BackgroundFamily caregiving-related physical and mental health problems may lead to work incapacity in employed caregivers. The aim of this study was to quantify sickness absences and disability pensions (SADP) among high-intensity family caregivers available to the labour market compared with a control population.MethodsThe study sample included all individuals in Finland, who had received caregiver’s allowance and were available to the labour market in 2012 (n=16 982) and their controls (n=35 371). Information on the number of sickness absence (spells >10 days) and disability pension (SADP) days and related diagnoses according to ICD-10 were obtained from national registers for the yea…