6533b82cfe1ef96bd128f4ee
RESEARCH PRODUCT
Italian Frontotemporal Dementia Network (FTD Group-SINDEM): sharing clinical and diagnostic procedures in Frontotemporal Dementia in Italy.
Borroni B.Turrone R.Galimberti D.Nacmias B.Alberici A.Benussi A.Caffarra P.Caltagirone C.Cappa S. F.Frisoni G. B.Ghidoni R.Marra C.Padovani A.Rainero I.Scarpini E.Silani V.Sorbi S.Tagliavini F.Tremolizzo L.Bruni A. C.Agosta F.Alberoni M.Appollonio I.Arighi A.Avanzi S.Baglio F.Benussi L.Bianchetti A.Binetti G.Bonanni L.Bottacchi E.Bruno G.Canevelli M.Canu E.Cerami C.Chiari A.Conti M. Z.Costa A.Costa M.Cotelli M.Cotelli M. S.Cupidi C.Daniele A.D'anna S.De Caro M. F.De Togni L.Dell'osa M. T.Di Stefano F.Ferrarese C.Ferrari C.Filastro F.Floris G.Franceschi M.Gennuso M.Ghidoni E.Giordana M. T.Gragnaniello D.Grimaldi L.Lanari A.Le Pira F.Lombardi G.Lorusso S.Ludovico L.Luzzi S.Magnani G.Manfredi L. G.Marano P.Marcone A.Marrosu M. G.Martorana A.Mascia M. G.Masullo C.Mauri M.Mazzone A.Mela A.Merlo P.Micheli A.Milia A.Mina C.Montella P.Mura G.Murru M. R.Nemni R.Paci C.Pantieri R.Panza F.Parnetti L.Perini M.Pettenati C.Piccininni M.Piccoli T.Pilia G.Pinessi L.Piras M. R.Realmuto S.Ricca I.Rizzetti M. C.Rozzini L.Rubino E.Sambati L.Seripa D.Siano P.Sinforiani E.Sorrentino G.Specchio L. M.Stracciari A.Susani E.Talarico G.Tartaglione B.Tessitore A.Thomas A.Tiezzi A.Tiraboschi P.Tognoni G.Tondelli M.Trebbastoni A.Turla M.Ursini F.Valluzzi F.Vista M.Zannino G.Zanusso G.subject
CounselingMalemedicine.medical_specialtyNeurologyNetworkCounseling; Frontotemporal dementia; Frontotemporal lobar degeneration; Genetics; Network; Survey; Aged; Aged 80 and over; Caregivers; Female; Frontotemporal Dementia; Humans; Italy; Male; Prevalence; Community Networks; Information Dissemination; Medicine (all); 2708; Neurology (clinical); Psychiatry and Mental HealthDermatologyFrontotemporal lobar degenerationCommunity Networksddc:616.89Caregivers/psychologyCounseling; Frontotemporal dementia; Frontotemporal lobar degeneration; Genetics; Network; Survey; Aged; Aged 80 and over; Caregivers; Female; Frontotemporal Dementia; Humans; Italy; Male; Prevalence; Community Networks; Information Dissemination; 2708; Neurology (clinical); Psychiatry and Mental HealthEpidemiologymental disordersmedicineGenetics80 and overPrevalenceDementiaHumansDisease management (health)PsychiatrySurveyAgedMED/26 - NEUROLOGIAAged 80 and overItalian networkFRONTO Temporal dementiabusiness.industryInformation DisseminationMedicine (all)Frontotemporal dementia Frontotemporal lobar degeneration Network Survey Genetics CounselingGeneral MedicineFrontotemporal lobar degenerationFrontotemporal Dementia/diagnosis/epidemiologymedicine.diseaseClinical trialCaregiversItalyPsychiatry and Mental HealthFrontotemporal DementiaSettore MED/26 - NeurologiaFemaleNeurosurgeryNeurology (clinical)businessAged; Aged 80 and over; Caregivers; Female; Frontotemporal Dementia; Humans; Italy; Male; Prevalence; Community Networks; Information DisseminationFrontotemporal dementia2708description
In the prospect of improved disease management and future clinical trials in Frontotemporal Dementia, it is desirable to share common diagnostic procedures. To this aim, the Italian FTD Network, under the aegis of the Italian Neurological Society for Dementia, has been established. Currently, 85 Italian Centers involved in dementia care are part of the network. Each Center completed a questionnaire on the local clinical procedures, focused on (1) clinical assessment, (2) use of neuroimaging and genetics; (3) support for patients and caregivers; (4) an opinion about the prevalence of FTD. The analyses of the results documented a comprehensive clinical and instrumental approach to FTD patients and their caregivers in Italy, with about 1,000 newly diagnosed cases per year and 2,500 patients currently followed by the participating Centers. In analogy to other European FTD consortia, future aims will be devoted to collect data on epidemiology of FTD and its subtypes and to provide harmonization of procedures among Centers.
| year | journal | country | edition | language |
|---|---|---|---|---|
| 2014-12-21 | Neurological sciences : official journal of the Italian Neurological Society and of the Italian Society of Clinical Neurophysiology |