Search results for "REGISTRY"

Response by Béjot and Duloquin to Letter Regarding Article, "Incidence of Acute Ischemic Stroke With Visible Arterial Occlusion: A Population-Based S…

2020

How Do Cancer Registries in Europe Estimate Completeness of Registration?

2008

Summary Objectives: Several methods for estimating completeness in cancer registries have been proposed. Little is known about their relative merits. Before embarking on a systematic comparison of methods we wanted to know which indicators were currently in use and whether there had been comparative investigations of estimation methods. Methods: We performed a survey among European cancer registries asking which methods for estimating completeness they used and whether they had performed comparisons of methods. Results: One hundred and ninety-five European cancer registries were contacted after identification using membership directories of the European Network of Cancer Registries (ENCR) a…

Do Overoptimistic Men Drive Creative Destruction? Evidence of Gendered Inventive Activity in Finland

2017

This study extends the analysis of the "patenting gender gap" into design rights and utility model (UMs), which are alternative methods for protecting intellectual property (IP). The analysis is descriptive and uses registry data from the Finnish patent and registration office (PRH) covering the years 1982–2013. A persistent gender gap is found for all intellectual property rights (IPRs): women are inventors and designers only in a small share of filings. The gap has narrowed over time for national patent and design right filings but not for UM filings. It is found that, in comparison to men, women are relatively less often individual inventors or designers and more often members of invento…

Temporal Trends in Transcatheter Aortic Valve Replacement in France

2017

Background - Transcatheter aortic valve replacement (TAVR) is standard therapy for patients with severe aortic stenosis who are at high surgical risk. However, national data regarding procedural characteristics and clinical outcomes over time are limited. Objectives - The aim of this study was to assess nationwide performance trends and clinical outcomes of TAVR during a 6-year period. Methods - TAVRs performed in 48 centers across France between January 2013 and December 2015 were prospectively included in the FRANCE TAVI (French Transcatheter Aortic Valve Implantation) registry. Findings were further compared with those reported from the FRANCE 2 (French Aortic National CoreValve and Edwa…

Back to Brit: retired British migrants returning from Spain

2015

ABSTRACTSince the seminal research of O'Reilly, Karen [2000. The British on the Costa del Sol. London: Routledge] and King, Russell, Anthony Warnes, Allan Williams [2000. Sunset Lives: British Retirement Migration to the Mediterranean. New York: Berg Publishers] about British citizens on the Costa del Sol there has been a surge in the publication of lifestyle migration papers, books and research. Nonetheless, there is a part of the lifestyle migration process that has been rarely explored: a return move to the country of origin following retirement migration. Research has indicated a broad increase in the number of older British returnees, yet there has been no substantive research on the t…

Phenotype/Genotype Relationship in Left Ventricular Noncompaction: Ion Channel Gene Mutations Are Associated With Preserved Left Ventricular Systolic…

2021

International audience; Background: Few data exist concerning genotype-phenotype relationships in left ventricular noncompaction (LVNC).Methods and results: From a multicenter French Registry, we report the genetic and clinical spectrum of 95 patients with LVNC, and their genotype-phenotype relationship. Among the 95 LVNC, 45 had at least 1 mutation, including 14 cases of mutation in ion channel genes. In a complementary analysis including 16 additional patients with ion channel gene mutations, for a total of 30 patients with ion channel gene mutation, we found that those patients had higher median LV ejection fraction (60% vs 40%; P < .001) and more biventricular noncompaction (53.1% vs 18…

EURECCA colorectal: multidisciplinary mission statement on better care for patients with colon and rectal cancer in Europe

2013

Contains fulltext : 125368.pdf (Publisher’s version ) (Closed access) BACKGROUND: Care for patients with colon and rectal cancer has improved in the last twenty years however still considerable variation exists in cancer management and outcome between European countries. Therefore, EURECCA, which is the acronym of European Registration of cancer care, is aiming at defining core treatment strategies and developing a European audit structure in order to improve the quality of care for all patients with colon and rectal cancer. In December 2012 the first multidisciplinary consensus conference about colon and rectum was held looking for multidisciplinary consensus. The expert panel consisted of…

Multiple primary neoplasms in childhood: data from the German children’s cancer registry

1998

Abstract The German Children’s Cancer Registry (GCCR) has documented all malignancies during the first 15 years of life in Germany since 1980. In a series of 20 388 cancer cases to the end of 1995, 127 children with multiple primary neoplasms up to the age of 15 years were identified. The children were monitored for 82 591 person-years with a mean observation time of 4.1 years. Relative and cumulative risk for the occurrence of second malignant neoplasms were estimated only for the first 15 years of life, as follow-up data beyond childhood are incomplete and valid data on the incidence of cancer in adolescents and adults are not available in Germany. The overall standardised incidence ratio…

Childhood cancer incidence patterns by race, sex and age for 2000-2006: A report from the South African National Cancer Registry

2014

Higher childhood cancer incidence rates are generally reported for high income countries although high quality information on descriptive patterns of childhood cancer incidence for low or middle income countries is limited, particularly in Sub-Saharan Africa. There is a need to quantify global differences by cancer types, and to investigate whether they reflect true incidence differences or can be attributed to under-diagnosis or under-reporting. For the first time, we describe childhood cancer data reported to the pathology report-based National Cancer Registry of South Africa in 2000-2006 and compare our results to incidence data from Germany, a high income country. The overall age-standa…

Incidence and patterns of late recurrences in colon cancer patients

2015

Long-term recurrences of colon cancer raised questions about the possible benefit of prolonging the recommended active 5-year surveillance. The aim of this study was to determine, for the first time, the incidence and patterns of late 10-year recurrence following curative resection of colon cancer. Data were obtained from two French digestive cancer registries. A total of 3,622 patients under 85 years resected for cure for colon cancer diagnosed between 1985 and 2000 were included. Information regarding recurrences was actively collected. Cumulative failure rates at 10 years were estimated using Kaplan-Meier estimates corrected by cause-specific hazards, and multivariable analysis was perfo…