0000000000274275
AUTHOR
Isabelle Fauriel
Information des couples et diagnostic prénatal d'une malformation cérébrale à pronostic incertain : analyse des pratiques
Resume L'echographie fœtale (EF) est l'element majeur du depistage des malformations fœtales. L'annonce d'une malformation cerebrale est particulierement delicate car pese souvent une double incertitude, diagnostique et pronostique. But. – L'objectif de cette etude a ete d'analyser comment s'organisent les pratiques en matiere de diagnostic prenatal par imagerie et comment sont realises la prise en charge et l'accompagnement des couples. Elle a particulierement porte sur les procedures d'information : contenu, condition de la delivrance, et leurs consequences. Methode. – Enquete multicentrique menee aupres de medecins referents de grands centres pluridisciplinaires de Paris et de sa region,…
Prenatal diagnosis of cerebral malformation with an uncertain prognosis: a study concerning couple's information and consequences on pregnancy.
Abstract Fetal ultrasound (FU) is used during almost all pregnancies and makes a large contribution to the identification of fetal malformation. It is particularly difficult to announce a malformation, particularly those affecting the brain, because there are often doubts concerning both the diagnosis and the prognosis. Aim. – The aim of this study was to analyze how imaging for prenatal screening is organized and how couples are managed and supported. We concentrated on the procedures used to inform couples: content, method of delivery and consequences. Method. –: Study amongst large multidisciplinary centers in Paris and the Paris region, by semi-directed interviews using a questionnaire.…