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RESEARCH PRODUCT

Assessing Somatic, Psychosocial, and Spiritual Distress of Patients with Advanced Cancer

Bernd-oliver MaierMartin WeberUlrike ReinholzR. SchwabManfred E. BeutelSabine FischbeckCornelia Nehring

subject

AdultMalemedicine.medical_specialtyPalliative carePsychometricsGastrointestinal DiseasesPsychological interventionPainSpiritual distressYoung AdultGermanyNeoplasmsSickness Impact ProfileSurveys and QuestionnairesActivities of Daily LivingmedicineHumansTerminally IllPsychological testingSex DistributionAgedAged 80 and overbusiness.industryPalliative CareReproducibility of ResultsCancerGeneral MedicineMiddle Agedmedicine.diseaseDistressDyspneaScale (social sciences)Physical therapyFemalebusinessPsychosocial

description

Objective: For adequate distress assessment in palliative care, we developed a screening evaluation tool. Methods: Proven methods of scale construction led to a 53-item pilot form of the Advanced Cancer Patients’ Distress Scale (ACPDS). We used Hornheide Questionnaire (HQ), Palliative Outcome Scale (POS), and Minimal Documentation System (MIDOS) for validation. Advanced cancer patients (N = 168) from 3 centers for palliative medicine (aged 23-89, 51% female) filled out the questionnaire. Results: With a principal component analysis (PCA), we extracted 5 distress scales (emotional reactions/physical restrictions, communication deficits, negative social reactions, pain, and gastrointestinal symptoms). Internal consistencies varied between medium (.52) and very good (.88). Positive validity scores were found. Conclusions: Using the ACPDS may help to identify needs for palliative care interventions and enhance the quality of palliative care.

yearjournalcountryeditionlanguage
2012-07-27American Journal of Hospice and Palliative Medicine®
https://doi.org/10.1177/1049909112453640