6533b86efe1ef96bd12cc951
RESEARCH PRODUCT
Real-life assessment of chronic rhinosinusitis patients using mobile technology: the mySinusitisCoach project by EUFOREA
Stephan VlaminckThibaut Van ZeleHerbert RiechelmannJoaquim MullolWinde LemmensPernilla Sahlstrand-johnsonMark JorissenMartin WagenmannJannis ConstantinidisBasile Nicolas LandisClaus BachertClaus BachertGeert De VosManuel Bernal-sprekelsenRussell CathcartPhilippe GevaertAndreas LeunigSven SeysPaolo CastelnuovoWerner HosemannAndreas SteinsvikMarjolein E. CornetClaire HopkinsBenedicte VerhaegheLieve DelsupeheMetin ÖNerciIsam AlobidSanna Toppila-salmiThomas HummelAnette Drøhse KjeldsenPavol SurdaSimon GaneChristine SegboerPeter Valentin TomazicLeen CoolsValerie J. LundGregory ClementPeter HellingsJaime Correia De SousaWytske FokkensZuzana DiamantZuzana DiamantSean CarrieMaria DoulaptsiLeif BjermerEmmanuel P. ProkopakisValérie HoxTony CoxGert MarienShana De BontJan VerfaillieKathie VierstraeteLars-olaf CardellIna CallebautDermot RyanOlivier VandervekenL DeneyerKato SpelemanRaf JacobsBenoit PuginSusanna PalkonenLaura Van GervenIsabel Proanosubject
Aplicacions mòbilsSYMPTOMSSinusititsvisual analogue scale0302 clinical medicineQuality of lifeMedicine and Health SciencesImmunology and AllergyNasal polyps030223 otorhinolaryngologyRhinitisnasal polypreal‐world evidenceASSOCIATION3. Good healthPREVALENCEALLERGIC RHINITISpatient-reported outcome measureCohortOriginal Articlepatient‐reported outcome measureENDOSCOPIC SINUS SURGERYmedicine.medical_specialtyVisual analogue scaleImmunologyMobile health technology03 medical and health sciencesNasal PolypsInternal medicinemedicineotorhinolaryngologic diseasesHumansNASALSinusitisreal-world evidenceDisease burdenMobile health technology; nasal polyp; patient-reported outcome measure; real-world evidence; visual analogue scaleTelecommunication in medicineAsthmabusiness.industryRhinitis Sinusitis and Upper Airway DiseaseFunctional endoscopic sinus surgerymedicine.diseasePrecision medicineSEVERITYCross-Sectional Studies030228 respiratory system3121 General medicine internal medicine and other clinical medicineChronic DiseaseMobile appsQuality of LifeASTHMAHuman medicineORIGINAL ARTICLESVISUAL ANALOG SCALEbusinessTelecomunicació en medicinadescription
Abstract Background Chronic rhinosinusitis (CRS) is a chronic inflammatory disease associated with a substantial personal and socioeconomic burden. Monitoring of patient‐reported outcomes by mobile technology offers the possibility to better understand real‐life burden of CRS. Methods This study reports on the cross‐sectional evaluation of data of 626 users of mySinusitisCoach (mSC), a mobile application for CRS patients. Patient characteristics of mSC users were analysed as well as the level of disease control based on VAS global rhinosinusitis symptom score and adapted EPOS criteria. Results The mSC cohort represents a heterogeneous group of CRS patients with a diverse pattern of major symptoms. Approximately half of patients reported nasal polyps. 47.3% of all CRS patients were uncontrolled based on evaluation of VAS global rhinosinusitis symptom score compared to 40.9% based on adapted EPOS criteria. The impact of CRS on sleep quality and daily life activities was significantly higher in uncontrolled versus well‐controlled patients. Half of patients had a history of FESS (functional endoscopic sinus surgery) and reported lower symptom severity compared to patients without a history of FESS, except for patients with a history of more than 3 procedures. Patients with a history of FESS reported higher VAS levels for impaired smell. Conclusion Real‐life data confirm the high disease burden in uncontrolled CRS patients, clearly impacting quality of life. Sinus surgery improves patient‐reported outcomes, but not in patients with a history of more than 3 procedures. Mobile technology opens a new era of real‐life monitoring, supporting the evolution of care towards precision medicine.
| year | journal | country | edition | language |
|---|---|---|---|---|
| 2020-11-01 |