6533b872fe1ef96bd12d430f

RESEARCH PRODUCT

Parents' experiences of neonatal transfer. A meta-study of qualitative research 2000-2017.

Mette Spliid LudvigsenHanne AagaardElisabeth O.c. HallLiv FegranLisbeth UhrenfeldtLisbeth UhrenfeldtLisbeth Uhrenfeldt

subject

Value (ethics)MaleParentsPatient TransferInterviewCritical IllnessContext (language use)Developmental psychologyFamily centered caremeta-study03 medical and health sciences0302 clinical medicineexperienceIntensive Care Units NeonatalHumans030212 general & internal medicineneonatal careGeneral NursingQualitative ResearchData collection030504 nursingCritically illInfant Newbornparentstransitionfamily-centered careneonatal transferFemaleDeconstruction0305 other medical sciencePsychologyExperience family-centered care meta-study neonatal care neonatal transfer parents qualitative research transitionqualitative researchQualitative research

description

Transfers of critically ill neonates are frequent phenomena. Even though parents’ participation is regarded as crucial in neonatal care, a transfer often means that parents and neonates are separated. A systematic review of the parents’ experiences of neonatal transfer is lacking. This paper describes a meta-study addressing qualitative research about parents’ experiences of neonatal transfer. Through deconstruction and reflections of theories, methods and empirical data, the aim was to achieve a deeper understanding of theoretical, empirical, contextual, historical and methodological issues of qualitative studies concerning parents’ experiences of neonatal transfer over the course of this meta-study (2000-2017). Meta-theory and meta-method analyses showed that caring, transition and family-centered care were main theoretical frames applied and that interviewing with a small number of participants was the preferred data collection method. The meta-data-analysis showed that transfer was a scary, unfamiliar and threatening experience for the parents; they were losing familiar context, were separated from their neonate and could feel their parenthood disrupted. We identified ‘wavering and wandering’ as a metaphoric representation of the parents’ experiences. The findings add knowledge about meta-study as an approach for comprehensive qualitative research and points at the value of meta-theory and meta-method analyses. Transfers of critically ill neonates are frequent phenomena. Even though parents’ par-ticipation is regarded as crucial in neonatal care, a transfer often means that parents and neonates are separated. A systematic review of the parents’ experiences of neo-natal transfer is lacking. This paper describes a meta- study addressing qualitative re-search about parents’ experiences of neonatal transfer. Through deconstruction and reflections of theories, methods, and empirical data, the aim was to achieve a deeper understanding of theoretical, empirical, contextual, historical, and methodological is-sues of qualitative studies concerning parents’ experiences of neonatal transfer over the course of this meta- study (2000–2017). Meta- theory and meta- method analyses showed that caring, transition, and family- centered care were main theoretical frames applied and that interviewing with a small number of participants was the preferred data collection method. The meta- data- analysis showed that transfer was a scary, un-familiar, and threatening experience for the parents; they were losing familiar context, were separated from their neonate, and could feel their parenthood disrupted. We identified ‘wavering and wandering’ as a metaphoric representation of the parents’ experiences. The findings add knowledge about meta- study as an approach for com-prehensive qualitative research and point at the value of meta- theory and meta- method analyses.

10.1111/nin.12231https://pubmed.ncbi.nlm.nih.gov/29446189