Search results for " caregiver"
showing 10 items of 86 documents
Ajuste familiar durante la pandemia de la COVID-19: un estudio de díadas
2020
The global pandemic of COVID-19 has brought a host of vital changes to society Families and their children have had to adapt to new routines and situations, which may have increased or aggravated the suffering of emotional symptoms However, the presence of resilience and positive emotional regulation strategies can cushion this impact on families with young children The aim of the present study is to know the variables that explained the problems of family emotional adjustment to the COVID-19 pandemic, considering the dyads of parents and their adolescent children Thirty-one dyads of adolescents between 11 and 19 years old (M = 13 90;SD = 1 85) and their main caregivers participated, 93 50%…
Italian Frontotemporal Dementia Network (FTD Group-SINDEM): sharing clinical and diagnostic procedures in Frontotemporal Dementia in Italy.
2014
In the prospect of improved disease management and future clinical trials in Frontotemporal Dementia, it is desirable to share common diagnostic procedures. To this aim, the Italian FTD Network, under the aegis of the Italian Neurological Society for Dementia, has been established. Currently, 85 Italian Centers involved in dementia care are part of the network. Each Center completed a questionnaire on the local clinical procedures, focused on (1) clinical assessment, (2) use of neuroimaging and genetics; (3) support for patients and caregivers; (4) an opinion about the prevalence of FTD. The analyses of the results documented a comprehensive clinical and instrumental approach to FTD patient…
Benefits of a support programme for family caregivers of patients at the end of life: A randomised controlled trial.
2020
This study aims to analyse the impact that a psychological intervention programme has on the emotional state of family caregivers of patients at the end of life. The study is longitudinal with two arms (control and experimental). Data was collected from 154 primary family caregivers of patients at the end of life as well as from their respective 154 care-recipients. The intervention programme has shown its effectiveness in reducing anxiety, emotional distress and burden in the family caregivers of end-of-life patients. A reduction of anxiety of patients whose family caregivers participated in the intervention was also observed.
Patient and Family Caregivers Neuroticism and Conscientiousness Personality in Relation to Quality of Life of Patient With Parkinsons Disease: A Cros…
2018
Background: Personality impacts life expectancy and comprehensive treatment efficacy for patients with Parkinson's disease (PD). However, current research fails to involve the family caregiver's personality despite significant external support provided by family caregivers. This study explored neuroticism and conscientiousness personality factors of the patient and family caregiver associated with quality of life (QoL) of PD patients. Methods: 134 couples of patients presenting with PD and their family caregivers that met inclusion criteria, were recruited for this cross-sectional study at Shanghai Tenth People's Hospital from October 2015 to 2017. The Parkinson's Disease Questionnaire-39 I…
The Narrative Medicine Approach in the Treatment of Diabetic Macular Edema: An Italian Experience.
2022
The study retraces the healthcare pathway of patients affected by diabetic macular edema (DME) through the direct voice of patients and caregivers by using a “patient journey” and narrative method approach. The mapping of the patient’s journey was developed by a multidisciplinary board of health professionals and involved four Italian retina centers. DME patients on intravitreal injection therapy and caregivers were interviewed according to the narrative medicine approach. Narratives were analyzed through a quali-quantitative tool, as set by the narrative medicine method. The study involved four specialized retina centers in Italy and collected a total of 106 narratives, 8…
Vissuti emotivi e bisogni non soddisfatti nei caregivers familiari di soggetti con disturbo del comportamento alimentare.
2013
Introduzione ed obiettivi: Nella ricerca clinica, il termine carer viene utilizzato per riferirsi a quelle persone direttamente coinvolte o con un ruolo significativo nella vita di un soggetto con un disturbo mentale. Finora è stata condotta poca ricerca sulla specificità dei caregivers di pazienti con disturbi alimentari. I disturbi del comportamento alimentare (ED) pongono diverse sfide ai caregivers, come la mancanza di informazioni, scarso supporto sociale e comprensione, burden psicologico. Questo studio esplorativo di tipo cross-sectional si focalizza sui bisogni psicologici e sull’esperienza di assistenza dei carers di pazienti con un disturbo alimentare, con l’obiettivo di esplorare…
Universal Breadwinner Versus Universal Caregiver Model : Fathers’ Involvement in Caregiving and Well-Being of Mothers of Offspring with Intellectual …
2015
Background The universal breadwinner model means both parents are employed; while the universal caregiver model implies that the father's hours of caregiving are equal or higher to those of the mother. This study aims to examine the hypothesis that the universal caregiver model is more related to the overall well-being of mothers of children with intellectual disabilities than the universal breadwinner model. Methods Face-to-face interview surveys were conducted in 2011 in Taiwan with 876 working-age mothers who had an offspring with intellectual disabilities. The survey included 574 mothers living with their husbands who became our participants. Results Both anova and regression analyses i…
Work incapacity among family caregivers : a record linkage study
2022
BackgroundFamily caregiving-related physical and mental health problems may lead to work incapacity in employed caregivers. The aim of this study was to quantify sickness absences and disability pensions (SADP) among high-intensity family caregivers available to the labour market compared with a control population.MethodsThe study sample included all individuals in Finland, who had received caregiver’s allowance and were available to the labour market in 2012 (n=16 982) and their controls (n=35 371). Information on the number of sickness absence (spells >10 days) and disability pension (SADP) days and related diagnoses according to ICD-10 were obtained from national registers for the yea…
Factors associated with stress when caring for a child with a short stature
2021
Short stature (SS) is one of the main diagnoses in Pediatric Endocrinology. SS can have a negative impact on family dynamics, causing stress and psychopathology. Poor adaptation by the family caregiver negatively affects the pedi- atric patient. Our objective was therefore to study the adjustment of the main family caregivers of pediatric patients with SS, analyzing the factors influencing it. One hundred and ten primary family caregivers of pediatric SS patients from hospitals in Valencia, Spain, participated. Parental stress (Pediatric Inventory for Parents), anxious and depres- sive symptoms (Hospital Anxiety and Depression Scale), family functioning (Family Cohesion and Adaptation Scale…
Emotional Distress of Patients at End-of-Life and Their Caregivers: Interrelation and Predictors
2018
Background: Patients at the end of life and their families experience a strong emotional impact. The well-being of these patients and that of their family caregiver are related. Aim: To study the variables related with the emotional well-being of patients with and without cognitive impairment at the end of life and that of their primary family caregivers. Design: Cross- sectional study. Participants: Data was collected from 202 patients at the end of life with different diagnosis (COPD, cancer, and frail elderly) as well as from their respective 202 primary family caregivers. Results: Structural equation models indicated that the emotional state of the patients was best predicted by their f…