Search results for "carer"
showing 10 items of 18 documents
The Objective and Subjective Caregiving Burden and Caregiving Behaviours of Parents of Adolescents with Anorexia Nervosa
2015
Objective: The study aimed to examine caregiving burden and levels of distress, accommodating behaviours, expressed emotion (EE) and carers' skills, in parents of adolescents with anorexia nervosa. Method: A semi-structured interview assessed the objective burden (time spent across caregiving tasks) in parents (n = 196) of adolescents (n = 144) receiving outpatient treatment for anorexia nervosa. Subjective burden (carers' distress), accommodating behaviours, EE and carers' skills were measured by self-report. Results: Mothers, on average, spent 2.5 h/day of care, mainly providing food and emotional support, compared with 1 h/day by fathers. The level of distress and accommodating behaviour…
Patients' and relatives' perceptions about intravenous and subcutaneous hydration.
2005
Hydration during palliative care is a controversial topic. Most of the arguments are based on anedoctal reports that have not been substantiated with scientific data. Given that the choice is problematic from a clinical perspective, preferences of patients and family should dictate whether intravenous fluids are administered. The aim of this study was to evaluate patient and family perceptions about hydration and two modes of providing hydration. Fifty-four consecutive patients admitted to an acute pain relief and palliative care unit who required hydration completed a questionnaire regarding their perceptions on hydration and modes of hydration. Similarly, the principal family carer was ch…
Transition Care in Anorexia Nervosa Through Guidance Online from Peer and Carer Expertise (TRIANGLE): Study Protocol for a Randomised Controlled Trial
2017
TRIANGLE is a multicentre trial investigating whether the addition of a novel intervention for patients and carers (ECHOMANTRA) to treatment as usual (TAU) improves outcomes for people with anorexia nervosa (AN). ECHOMANTRA is based on the cognitive interpersonal model of AN and includes assessments, workbooks, videos, online groups and joint Skype sessions for patients and carers. People receiving intensive hospital treatment (N = 380) will be randomised to TAU or TAU plus ECHOMANTRA. Participants will be assessed over an 18-month period following randomisation. The primary outcome is patient psychological well-being at 12 months postrandomisation. Secondary outcomes include (i) patient's …
Live-in migrant care worker arrangements in Germany and the Netherlands. Motivations and justifications in family decision-making
2019
Private households in ageing societies increasingly employ live-in migrant carers (LIMCs) to care for relatives in need of 24/7 care and supervision. Whilst LIMC arrangements are a common practice in Germany, they are only recently emerging in the Netherlands. Taking this development as a starting point, this study uses the countries’ different long-term care (LTC) regimes as the analytical framework to explore and compare the motivations and justifications of German and Dutch family carers who opt for an LIMC arrangment. Findings show that Dutch and German LTC regimes impact differently the decision-making processes of families, as well as on patterns of justification, through a combinatio…
Adult children and parental care-giving: making sense of participation patterns among siblings
2010
ABSTRACTThe aim of this article is to analyse 20 Finnish working carers' perceptions of their sibling relations and the sharing of the responsibility for parental care. The main focus is on the interviewees' rationales for the participation or non-participation of their siblings in the parents' care. Almost all the interviewed carers stated that the division of care responsibilities is unequal and that they are the primary carers, but the majority did not convey any clear intention to try to persuade their siblings to increase their participation in parental care. In many cases, the siblings were described either as entirely absent or as providing occasional backup, but some interviewees re…
Viajando a la mercantil o apresado de ingleses piratas: dos formas de dar la vuelta al mundo a finales del siglo XVII y dos maneras de contarlo
2013
[EN] The paper analyses the accounts of two trips around the world conducted in the last two decades of the Seventeenth-century and published the one in Naples, 1699-1700, the other in mexico, a decade earlier. the first case was led by giovanni francesco gemelli Careri, a traveller vilified as fake by whom gave the final impetus to the genre of travel literature from french and British Enlightement. the second case was led by Alonso Ramirez, a traveller who was considered for three centuries just a fictional character. though two texts set in a peripheral place and time, from the point of view of European geopolitics of the moment and of the literary genre of travel writing as well, our ai…
A longitudinal examination of dyadic distress patterns following a skills intervention for carers of adolescents with anorexia nervosa
2016
Family interventions in anorexia nervosa (AN) have been developed to ameliorate maladaptive patterns of patient-carer interaction that can play a role in illness maintenance. The primary aim of this study is to examine the inter-relationship between baseline and post-treatment distress in dyads of carers and patients with AN to examine the interdependence between carers and patients. The secondary aim is to examine whether a carer skills intervention [Experienced Carer Helping Others (ECHO)] impacts on this inter-relationship. Dyads consisting of treatment-seeking adolescents with AN and their primary carer (n = 149; mostly mothers) were randomised to receive a carer skills intervention (EC…
Elderly Parents’ Need for Help and Adult Children's Moving Decisions
2015
Recent changes in Finnish welfare policies have increased the need for family involvement in eldercare. This article uses qualitative interviews to study working adult daughters’ reasons for moving in with their parent(s). Coresidence was linked to the parents’ need for support, but also to the daughters’ life situations, family histories, the availability of welfare services, and cultural norms and values. The interviewees used the “familist” and “independent life” discourses in their speech. The familist discourse was used to argue for coresidence as a natural continuation of family traditions and life history, whereas the independent life discourse was used to legitimize the need for alt…
Cappella Sistina: racconto pittorico
2020
Monumento della genialità dell’arte rinascimentale, la Cappella Sistina è un racconto pittorico delle varie tappe della storia dell’Umanità in prospettiva cristiana. Un progetto che prende slancio dall’atto della Creazione, attraversa narrazioni e passioni delle Storie di Mosè e di Cristo, e giunge fino all’anticipazione del Giudizio Universale. Sia per la meraviglia che si prova nel fare i primi concitati passi tra stuoli di turisti, sia per quel senso di straniante familiarità generato dagli innumerevoli riadattamenti contemporanei dei suoi capolavori, la Cappella Sistina non smette di stupire. Prendendo le mosse da una prospettiva assai diversa rispetto a queste riletture creative e a qu…
Interventions for Family Members and Carers of Patients with Borderline Personality Disorder: A Systematic Review.
2020
Carers of patients with borderline personality disorder (BPD) experience high levels of distress. Several studies have been carried out on interventions designed to decrease their burden. However, the evidence from these studies has not been summarized. The objective of this work is to explore the clinical utility of interventions developed for family members of patients with BPD. A systematic review was conducted following the PRISMA guidelines (registration number CRD42018107318), including psychological interventions focused on relatives of patients with BPD. The following databases were used: PsycINFO, PubMed, EBSCOhost, and Web of Science. Two independent researchers reviewed the studi…