Search results for "family-centered"
showing 9 items of 9 documents
Family-centered practices and the parental well-being of young children with disabilities and developmental delay.
2019
Abstract Background Research evidence from studies in North America on the relationships between family-centered practices, parents’ self-efficacy beliefs, parenting confidence and competence beliefs, and parents’ psychological well-being was used to confirm or disconfirm the same relationships in two studies in Spain. Aims The aim of Study 1 was to determine if results from studies in North America could be replicated in Spain and the aim of Study 2 was to determine if results from Study 1 could be replicated with a second sample of families in Spain. Methods and procedures A survey including the study measures was used to obtain data needed to evaluate the relationships among the variable…
Conditions and strategies to meet the challenges imposed by the COVID-19-related visiting restrictions in the intensive care unit: A Scandinavian cro…
2022
ObjectivesTo examine conditions and strategies to meet the challenges imposed by the coronavirus disease 2019 (COVID-19)-related visiting restrictions in Scandinavian intensive care units.Research methodology/designA cross-sectional survey.SettingAdult intensive care units in Denmark, Norway and Sweden.Main outcome measuresLikert scale responses and free-text comments within six areas: capacity and staffing, visiting policies and access to the unit, information and conferences with relatives, written information, children as relatives and follow-up initiatives.ResultsThe overall response rate was 53% (74/140 participating units). All intensive care units had planned for capacity extensions;…
Follow-Up to Ensure Continuity of Care and Support Preventive Care
2023
Over the last decades, the prevalence of chronic health conditions and disabilities among children rose steadily, thanks to medical advances in both treating the primary condition and managing its complications. The improved long-term survival rates led to persistently high rates of pediatric chronic health conditions, which are often burdened with limitation in daily activity and dependence on medication, special diets, medical technology, assistive devices, and specialized staff. Therefore, children with complex chronic conditions are a frail population who generally need healthcare services beyond what is usual for healthy children. Indeed, their health issues often require specialized a…
Low Frequency of Viral Respiratory Tract Infections During Family-Centered Neonatal Intensive Care: Results of a Prospective Surveillance Study
2020
Background: Viral respiratory tract infections (VRTI) may cause severe respiratory and sepsis-like symptoms in infants hospitalized in the neonatal intensive care unit (NICU). Little is known about the frequencies of VRTI in relation to visiting policies in the NICU. Objective: Aim of this study was to evaluate the frequency of symptomatic and asymptomatic VRTI in our family-centered NICU. Methods: This was a 12-month, prospective, observational study from February 2018 to January 2019. Infants hospitalized ≥72 h were eligible for the study. To determine the frequency of VRTI, multiplexed point-of-care testing (mPOCT) of symptomatic infants was combined with a weekly screening of all infant…
Parents' experiences of neonatal transfer. A meta-study of qualitative research 2000-2017.
2018
Transfers of critically ill neonates are frequent phenomena. Even though parents’ participation is regarded as crucial in neonatal care, a transfer often means that parents and neonates are separated. A systematic review of the parents’ experiences of neonatal transfer is lacking. This paper describes a meta-study addressing qualitative research about parents’ experiences of neonatal transfer. Through deconstruction and reflections of theories, methods and empirical data, the aim was to achieve a deeper understanding of theoretical, empirical, contextual, historical and methodological issues of qualitative studies concerning parents’ experiences of neonatal transfer over the course of this …
Harjaantumisoppilaiden vanhempien kokemuksia moniammatillisesta yhteistyöstä
2000
Vanhemmuus: täysivaltaisuutta vai alisteisuutta : päiväkodin erityisryhmässä olevan lapsen vanhempien käsityksiä arjesta diskurssianalyyttisestä näkö…
2000
Hacia la implementación de un modelo de atención temprana por parte de una Organización Paraguaya
2020
Implementation science has been developed to help understand why evidence-based practices are not adopted as rapidly as they might. We describe here the process a rehabilitation center in Paraguay is undergoing to transform itself into a state-of-the-art early intervention program. We describe the organization and its contextual strengths and barriers, the model it chose to implement, and the implementation procedures it has attempted. The implications for model fidelity are highlighted, as this organization needed to make adaptations to the model as designed, to fit the particular context of its mission and the Paraguayan culture. Features of the Routines-Based Model are described. La cie…
Konsultoivan varhaiserityisopettajan perhelähtöiset toimintatavat
2018
Artikkelissa tarkastellaan konsultoivien varhaiserityisopettajien yhteistyötä lapsen vanhempien kanssa. Tutkimuksen tarkoituksena oli selvittää, miten konsultoivat varhaiserityisopettajat toteuttavat perhelähtöistä työtä. Lisäksi tarkasteltiin, miten konsultoivan varhaiserityisopettajan mahdollisuus vaikuttaa omaan toimintatapaansa perheiden kanssa on yhteydessä työn perhelähtöisyyteen. Tutkimuksen aineisto on kerätty kyselylomakkeella, joka lähetettiin kaikille Suomen varhaiserityisopettajille, jotka tekevät konsultoivaa työtä ilman omaa lapsiryhmää (N = 637). Kyselyyn vastasi 368 varhaiserityisopettajaa (58 %). Perhelähtöisen työn ulottuvuuksia muodostui eksploratiivisen faktorianalyysin …