0000000000214679

AUTHOR

Giuliana Gualberti

sj-pdf-5-ejo-10.1177_11206721211034649 – Supplemental material for Non-infectious uveitis burden on quality of life and work impairment assessed through different psychometric questionnaires

Supplemental material, sj-pdf-5-ejo-10.1177_11206721211034649 for Non-infectious uveitis burden on quality of life and work impairment assessed through different psychometric questionnaires by Luca Cimino, Piergiorgio Neri, Elisabetta Miserocchi, Maria Pia Paroli, Lorenzo Vannozzi, Leonardo Mastropasqua, Caterina Gagliano, Maria Vadalà, Michele Figus, Francesca Romana Florio, Barbara Iaccheri, Paolo Mora, Maurizio Fossarello, Paola Balestrieri, Giuliana Gualberti, Francesca Marando and Massimo Accorinti in European Journal of Ophthalmology

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HIDRAdisk: validation of an innovative visual tool to assess the burden of hidradenitis suppurativa

Background: Hidradenitis suppurativa (HS) is a chronic, relapsing, inflammatory skin disease characterized by painful inflamed nodules, recurrent abscesses and fistulas located in apocrine gland–bearing body sites. The negative impact of HS on patient's quality of life (QoL) has been reported to be greater than other dermatologic conditions as psoriasis and atopic eczema, and its improvement is an important goal in disease management. Nowadays, there are no specific validated QoL instruments available for HS and generic dermatologic questionnaires are used. Objective: The objective of this study was to demonstrate the validity, reliability and responsiveness of HIDRAdisk, a new innovative t…

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sj-docx-2-ejo-10.1177_11206721211034649 – Supplemental material for Non-infectious uveitis burden on quality of life and work impairment assessed through different psychometric questionnaires

Supplemental material, sj-docx-2-ejo-10.1177_11206721211034649 for Non-infectious uveitis burden on quality of life and work impairment assessed through different psychometric questionnaires by Luca Cimino, Piergiorgio Neri, Elisabetta Miserocchi, Maria Pia Paroli, Lorenzo Vannozzi, Leonardo Mastropasqua, Caterina Gagliano, Maria Vadalà, Michele Figus, Francesca Romana Florio, Barbara Iaccheri, Paolo Mora, Maurizio Fossarello, Paola Balestrieri, Giuliana Gualberti, Francesca Marando and Massimo Accorinti in European Journal of Ophthalmology

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sj-docx-3-ejo-10.1177_11206721211034649 – Supplemental material for Non-infectious uveitis burden on quality of life and work impairment assessed through different psychometric questionnaires

Supplemental material, sj-docx-3-ejo-10.1177_11206721211034649 for Non-infectious uveitis burden on quality of life and work impairment assessed through different psychometric questionnaires by Luca Cimino, Piergiorgio Neri, Elisabetta Miserocchi, Maria Pia Paroli, Lorenzo Vannozzi, Leonardo Mastropasqua, Caterina Gagliano, Maria Vadalà, Michele Figus, Francesca Romana Florio, Barbara Iaccheri, Paolo Mora, Maurizio Fossarello, Paola Balestrieri, Giuliana Gualberti, Francesca Marando and Massimo Accorinti in European Journal of Ophthalmology

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HepaDisk – A new quality of life questionnaire for HCV patients

Abstract Background Since most patients with hepatitis C virus (HCV) infection now receive treatment irrespective of liver disease severity, special attention to patient quality of life (QoL), including psycho-social aspects, is required. No QoL questionnaire is specific for patients with HCV. Aims To develop and validate a short Italian questionnaire (HepaDisk) assessing the QoL of patients affected by HCV with intuitive graphic results that is understandable by patients and physicians. Methods A questionnaire, drafted by a steering committee, underwent a Delphi survey. A multicenter, observational study was conducted to validate the developed HepaDisk versus other tools (CLDQ-I, SF-36, WP…

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Non-infectious uveitis burden on quality of life and work impairment assessed through different psychometric questionnaires

Background: The purpose of this study was to evaluate the association between a novel psychometric 12-item questionnaire (U-qest) and other validated questionnaires to assess quality of life and work impairment in patients with non-infectious uveitis. Methods: Data were collected at baseline and 3 months postbaseline using U-qest and two other validated questionnaires: The National Eye Institute 25-Item Visual Function Questionnaire (VFQ-25) and the 12-Item Short-Form Health Survey (SF-12). Results: A total of 136 patients (52.2% female) aged 47.9 ± 14.8 years (mean ± SD) were enrolled in 14 uveitis referral centres. U-qest correlated moderately with VFQ-25 and SF-12 at baseline and at 3 mo…

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sj-docx-1-ejo-10.1177_11206721211034649 – Supplemental material for Non-infectious uveitis burden on quality of life and work impairment assessed through different psychometric questionnaires

Supplemental material, sj-docx-1-ejo-10.1177_11206721211034649 for Non-infectious uveitis burden on quality of life and work impairment assessed through different psychometric questionnaires by Luca Cimino, Piergiorgio Neri, Elisabetta Miserocchi, Maria Pia Paroli, Lorenzo Vannozzi, Leonardo Mastropasqua, Caterina Gagliano, Maria Vadalà, Michele Figus, Francesca Romana Florio, Barbara Iaccheri, Paolo Mora, Maurizio Fossarello, Paola Balestrieri, Giuliana Gualberti, Francesca Marando and Massimo Accorinti in European Journal of Ophthalmology

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sj-pdf-4-ejo-10.1177_11206721211034649 – Supplemental material for Non-infectious uveitis burden on quality of life and work impairment assessed through different psychometric questionnaires

Supplemental material, sj-pdf-4-ejo-10.1177_11206721211034649 for Non-infectious uveitis burden on quality of life and work impairment assessed through different psychometric questionnaires by Luca Cimino, Piergiorgio Neri, Elisabetta Miserocchi, Maria Pia Paroli, Lorenzo Vannozzi, Leonardo Mastropasqua, Caterina Gagliano, Maria Vadalà, Michele Figus, Francesca Romana Florio, Barbara Iaccheri, Paolo Mora, Maurizio Fossarello, Paola Balestrieri, Giuliana Gualberti, Francesca Marando and Massimo Accorinti in European Journal of Ophthalmology

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sj-docx-3-ejo-10.1177_11206721211034649 – Supplemental material for Non-infectious uveitis burden on quality of life and work impairment assessed through different psychometric questionnaires

Supplemental material, sj-docx-3-ejo-10.1177_11206721211034649 for Non-infectious uveitis burden on quality of life and work impairment assessed through different psychometric questionnaires by Luca Cimino, Piergiorgio Neri, Elisabetta Miserocchi, Maria Pia Paroli, Lorenzo Vannozzi, Leonardo Mastropasqua, Caterina Gagliano, Maria Vadalà, Michele Figus, Francesca Romana Florio, Barbara Iaccheri, Paolo Mora, Maurizio Fossarello, Paola Balestrieri, Giuliana Gualberti, Francesca Marando and Massimo Accorinti in European Journal of Ophthalmology

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sj-pdf-5-ejo-10.1177_11206721211034649 – Supplemental material for Non-infectious uveitis burden on quality of life and work impairment assessed through different psychometric questionnaires

Supplemental material, sj-pdf-5-ejo-10.1177_11206721211034649 for Non-infectious uveitis burden on quality of life and work impairment assessed through different psychometric questionnaires by Luca Cimino, Piergiorgio Neri, Elisabetta Miserocchi, Maria Pia Paroli, Lorenzo Vannozzi, Leonardo Mastropasqua, Caterina Gagliano, Maria Vadalà, Michele Figus, Francesca Romana Florio, Barbara Iaccheri, Paolo Mora, Maurizio Fossarello, Paola Balestrieri, Giuliana Gualberti, Francesca Marando and Massimo Accorinti in European Journal of Ophthalmology

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sj-docx-1-ejo-10.1177_11206721211034649 – Supplemental material for Non-infectious uveitis burden on quality of life and work impairment assessed through different psychometric questionnaires

Supplemental material, sj-docx-1-ejo-10.1177_11206721211034649 for Non-infectious uveitis burden on quality of life and work impairment assessed through different psychometric questionnaires by Luca Cimino, Piergiorgio Neri, Elisabetta Miserocchi, Maria Pia Paroli, Lorenzo Vannozzi, Leonardo Mastropasqua, Caterina Gagliano, Maria Vadalà, Michele Figus, Francesca Romana Florio, Barbara Iaccheri, Paolo Mora, Maurizio Fossarello, Paola Balestrieri, Giuliana Gualberti, Francesca Marando and Massimo Accorinti in European Journal of Ophthalmology

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Hidradenitis Suppurativa in a Large Cohort of Italian Patients: Evaluation of the Burden of Disease

<b><i>Background:</i></b> Hidradenitis suppurativa (HS) is a chronic, inflammatory, recurrent, debilitating skin disease of the hair follicle that usually occurs after puberty with painful, deep-seated, inflamed nodules and sinus tracts in the apocrine gland-bearing areas of the body, most commonly the axillae and inguinal and anogenital regions, with a relevant impact on patients’ quality of life (QoL). <b><i>Objective:</i></b> To evaluate how the burden of HS disease impacts on patient well-being and working activities in a large Italian population over a period of 9 months. <b><i>Methods:</i></b> A multicenter, prosp…

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sj-docx-2-ejo-10.1177_11206721211034649 – Supplemental material for Non-infectious uveitis burden on quality of life and work impairment assessed through different psychometric questionnaires

Supplemental material, sj-docx-2-ejo-10.1177_11206721211034649 for Non-infectious uveitis burden on quality of life and work impairment assessed through different psychometric questionnaires by Luca Cimino, Piergiorgio Neri, Elisabetta Miserocchi, Maria Pia Paroli, Lorenzo Vannozzi, Leonardo Mastropasqua, Caterina Gagliano, Maria Vadalà, Michele Figus, Francesca Romana Florio, Barbara Iaccheri, Paolo Mora, Maurizio Fossarello, Paola Balestrieri, Giuliana Gualberti, Francesca Marando and Massimo Accorinti in European Journal of Ophthalmology

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sj-pdf-4-ejo-10.1177_11206721211034649 – Supplemental material for Non-infectious uveitis burden on quality of life and work impairment assessed through different psychometric questionnaires

Supplemental material, sj-pdf-4-ejo-10.1177_11206721211034649 for Non-infectious uveitis burden on quality of life and work impairment assessed through different psychometric questionnaires by Luca Cimino, Piergiorgio Neri, Elisabetta Miserocchi, Maria Pia Paroli, Lorenzo Vannozzi, Leonardo Mastropasqua, Caterina Gagliano, Maria Vadalà, Michele Figus, Francesca Romana Florio, Barbara Iaccheri, Paolo Mora, Maurizio Fossarello, Paola Balestrieri, Giuliana Gualberti, Francesca Marando and Massimo Accorinti in European Journal of Ophthalmology

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