6533b86efe1ef96bd12cb576

RESEARCH PRODUCT

Proceedings of the 2nd BEAT-PCD conference and 3rd PCD training school: part 1

Claire HoggDominic P. NorrisRobert A. HirstNisreen RummanClaudia E. KuehniClaudia E. KuehniPhilipp LatzinAmanda HarrisAmelia ShoemarkAmelia ShoemarkVictoria KeenanDaniel PellicerMikkel Christian AlaninFlorian S. HalbeisenBruna RubboGemma MarshAmanda FriendZuzanna Bukowy-bierylloMyrofora GoutakiFrancisco DasíAna ReulaJulie DuncanWoolf T. WalkerClaire L. JacksonJane S. LucasKim G. Nielsen

subject

0301 basic medicineChronic rhinosinusitiseducationMEDLINElcsh:Medicine610 Medicine & healthMeeting ReportGeneral Biochemistry Genetics and Molecular Biology03 medical and health sciences0302 clinical medicineMultidisciplinary approach360 Social problems & social servicesmedicineotorhinolaryngologic diseasesCost actionlcsh:Science610 Medicine & healthPrimary ciliary dyskinesiaMedical educationbusiness.industrylcsh:RGeneral Medicinemedicine.diseaseClinical trial030104 developmental biology030228 respiratory systemLung diseaseMalaltieslcsh:QWorking groupbusiness360 Social problems & social services

description

Primary ciliary dyskinesia (PCD) is a rare heterogenous condition that causes progressive suppurative lung disease, chronic rhinosinusitis, chronic otitis media, infertility and abnormal situs. ‘Better Experimental Approaches to Treat Primary Ciliary Dyskinesia’ (BEAT-PCD) is a network of scientists and clinicians coordinating research from basic science through to clinical care with the intention of developing treatments and diagnostics that lead to improved long-term outcomes for patients. BEAT-PCD activities are supported by EU funded COST Action (BM1407). The second BEAT-PCD conference, and third PCD training school were held jointly in April 2017 in Valencia, Spain. Presentations and workshops focussed on advancing the knowledge and skills relating to PCD in: basic science, epidemiology, diagnostic testing, clinical management and clinical trials. The multidisciplinary conference provided an interactive platform for exchanging ideas through a program of lectures, poster presentations, breakout sessions and workshops. Three working groups met to plan consensus statements. Progress with BEAT-PCD projects was shared and new collaborations were fostered. In this report, we summarize the meeting, highlighting developments made during the meeting. Electronic supplementary material The online version of this article (10.1186/s12919-018-0098-9) contains supplementary material, which is available to authorized users.

https://dx.doi.org/10.7892/boris.113509