Factores de protección de duelo complicado en dolientes de primer grado: capacidad mindful y autocompasións de primer grado: capacidad mindful y autocompasión

espanolMarco teorico: la perdida de un familiar de primer grado genera un gran impacto emocional y fisico en la persona, pero la capacidad mindful y la autocompasion pueden amortiguarla. El objetivo general fue valorar la capacidad mindful, la autocompasion y la presencia de duelo complicado (DC) en dolientes de primer grado. Metodo: 26 dolientes (84,60% mujeres), de 19 a 73 anos (M=44,04; DT= 14,21) fueron evaluados mediante: Mindful Attention Awareness Scale, Escala de Autocompasion e Inventario de Duelo Complicado. Se realizaron analisis descriptivos, pruebas t, d de Cohen y correlaciones de Pearson. Resultados: presentaron puntuaciones moderadas de capacidad mindful y autocompasion, per…

Psychometric properties of the questionnaire on threat perception of chronic illnesses in pediatric patients*

Objetivo: o objetivo do estudo foi avaliar as propriedades psicometricas do Questionario de Percepcao de Doencas Versao Breve em uma amostra de adolescentes com condicoes endocrinas ou pneumologicas cronicas. Analisar a dimensionalidade e reduzir a escala elaborando baremas por sexo e diagnostico medico. Metodo: avaliamos 510 pacientes com idades entre 9 e 16 anos usando o Questionario de Percepcao de Doencas Versao Breve e a Escala Hospitalar de Ansiedade e Depressao. Foram realizados testes de confiabilidade, validade do construto, validade de criterio e comparacao de medias segundo o diagnostico e as variaveis sociodemograficas. As analises de confiabilidade e validade mostraram propried…

Factor structure of the Hospital Anxiety and Depression Scale in adolescent patients with chronic disease.

The Hospital Anxiety and Depression Scale (HADS) is a screening instrument that assesses emotional symptoms in different populations and medical conditions. This study analyzes the psychometric properties and factor structure of the HADS in adolescents with chronic disease and the differences based on their medical condition.The HADS was administered to a sample of 302 adolescents with chronic disease. Exploratory factor analyses were done in a subsample of 100 adolescents, while confirmatory factor analyses were performed in the rest of participants (202) to examine the validity and reliability of the HADS (14 items); an analysis of variance for a single factor was also done to study diffe…

Duelo complicado por la muerte de un hijo: presentación de un caso

La pérdida de un ser querido por suicidio puede ser uno de los eventos más estresantes de la vida. Los factores de riesgo y protección asociados a cada caso pueden favorecer o dificultar el procesamiento de la pérdida. Se presenta un caso de trastorno de duelo complejo persistente en el que se aplica el Protocolo Mindfulness para la Aceptación del Dolor, las Emociones y el Duelo. La paciente mejora tras la intervención, observándose que ya no puntúa en trastorno de duelo complejo persistente, ni sintomatología ansiosa de forma significativa, ha disminuido su afecto negativo y aumentado su autocompasión, afecto positivo y bienestar psicológico. Concluimos que se hace necesaria una evaluación…

Psychological aspects of pre-adolescents or adolescents with precocious puberty: A systematic review.

Precocious puberty (PP) is an illness that appears when puberty, begins some years earlier than usual, provoking inferences in preadolescents and adolescents and their families. Therefore, the aim is to analyze if psychological consequences can be observed in groups of preadolescents or adolescents with PP. Method: A bibliographic search of the scientific literature was made following the PRISMA guide in the following databases: ProQuest, Psychinfo, Web Of Science, and Scopus. 592 studies were found, were uploaded to Covidence to make a screening, of which finally 6 were included for the revision according to the inclusion and exclusion criteria. Two independent evaluators made the search, …

Chronic Respiratory Disease Questionnaire (CRQ-SAS): Analysis of psychometric properties

The Chronic Respiratory Disease Questionnaire Self-Administered Standardized (CRQ-SAS) format is used to assess health-related quality of life in different languages and adult populations, but it has not been validated in adolescents. This study analyzes the psychometric properties of the CRQ-SAS in a sample of adolescent patients with chronic respiratory disease and correlates them to anxiety and depression.In relation to the CRQ-SAS psychometric properties, exploratory and confirmatory factor analyses were done to assess the instrument's reliability and validity. Correlations and multiple linear regressions with the Hospital Anxiety and Depression Scale were done to assess the relation wi…

Predictors of complicated grief in mourners of sudden cardiac death.

COPD at the end of life: Predictors of the emotional distress of patients and their family caregivers.

BackgroundFew studies have focused on patients' emotional distress with end-stage chronic obstructive pulmonary disease (COPD) and their main family caregivers.MethodsCross-sectional data about emotional, functional, and burden-related variables were collected from 85 patients with end-stage COPD and their 85 respective main family caregivers to determine the variables that could predict their emotional well-being. Descriptive analyses, comparison of means, hierarchical regression models, and comparative quali-quantitative analyses were carried out.ResultsData show that the great majority of patients with COPD spend years with this diagnosis, and have been admitted to the hospital several t…

Childhood adaptation: Perception of the parenting style and the anxious‐depressive symptomatology

Objectives Childhood adaptation is essential for proper social-emotional development. Children growing up in a family context where they feel supported and protected are less vulnerable in the presence of psychopathology. The aim of this study is analysing the impact of parenting styles and the anxious-depressive symptoms on child adaptation. Design and setting A total of 367 children between the ages of 10 and 12, following a similar distribution by sex. The children completed self-reports assessing parenting styles, child adaptation, and depressive-anxiety symptomatology. Methods The data were analysed using two complementary methodologies: linear regressions and fuzzy-set qualitative com…

Benefits of a support programme for family caregivers of patients at the end of life: A randomised controlled trial.

This study aims to analyse the impact that a psychological intervention programme has on the emotional state of family caregivers of patients at the end of life. The study is longitudinal with two arms (control and experimental). Data was collected from 154 primary family caregivers of patients at the end of life as well as from their respective 154 care-recipients. The intervention programme has shown its effectiveness in reducing anxiety, emotional distress and burden in the family caregivers of end-of-life patients. A reduction of anxiety of patients whose family caregivers participated in the intervention was also observed.

Supplementary_files_JHP_Final – Supplemental material for Benefits of a support programme for family caregivers of patients at the end of life: A randomised controlled trial

Supplemental material, Supplementary_files_JHP_Final for Benefits of a support programme for family caregivers of patients at the end of life: A randomised controlled trial by Soto-Rubio Ana Lucila, Valero-Moreno Selene and Pérez-Marín Marián in Journal of Health Psychology

Cuestionario de adaptación a la diabetes-mellitus tipo I en pediatría: relación con la psicopatología

ABSTRACT Objective: to study the psychometric properties of an adaptive disease response questionnaire for use with Spanish children with type 1 diabetes; to analyse this response in this sample and to observe the relationship between adaptive response and levels of anxiety-depression. Method: a total of 100 patients with type 1 diabetes aged between nine and 16 years (M=12.28, SD=1.78) participated in the study, of which 59% were children. Data was collected in public hospitals via interviews using the Adaptive Disease Response Questionnaire and Anxiety and Depression Scale. The data was analysed using Pearson correlations, multiple hierarchical linear regressions, Student’s t Test for ind…

Responding to the Spiritual Needs of Palliative Care Patients: A Randomized Controlled Trial to Test the Effectiveness of the Kibo Therapeutic Interview

Context The WHO recognizes the need to attend to patients' spiritual needs as being fundamental to comprehensive and high-quality end-of-life care. Spiritual needs must be attended since the resolution of biological and psychosocial issues is insufficient to reduce patients' suffering. Associations have been found between spiritual needs and other variables of importance for patients in palliative care. Despite the consensus that exists regarding the importance of assessing and attending to spiritual needs, professionals encounter many difficulties in attempting to do so. Objectives Our study aims to demonstrate the benefits that the KIBO therapeutic interview in palliative care patients ca…

Diabetes mellitus tipo 1: breve revisión de los principales factores psicológicos asociados

Resumen: La diabetes mellitus tipo 1 (DM1) es una enfermedad crónica ampliamente extendida entre la población infantojuvenil. Suele suponer una sobrecarga significativa en el niño y su familia, modificando aspectos en su estilo de vida, necesarios para cumplimentar las exigencias del tratamiento.Nuestro objetivo es estudiar las principales características psicológicas, familiares y de ajuste a la enfermedad de los niños y adolescentes diagnosticados de DM1, haciendo especial hincapié en los factores psicopatológicos asociados.La metodología empleada ha consistido en una búsqueda bibliográfica sistemática en las principales bases de datos científicas.Debido al impacto biopsicosocial que la D…

Ajuste familiar durante la pandemia de la COVID-19: un estudio de díadas

The global pandemic of COVID-19 has brought a host of vital changes to society Families and their children have had to adapt to new routines and situations, which may have increased or aggravated the suffering of emotional symptoms However, the presence of resilience and positive emotional regulation strategies can cushion this impact on families with young children The aim of the present study is to know the variables that explained the problems of family emotional adjustment to the COVID-19 pandemic, considering the dyads of parents and their adolescent children Thirty-one dyads of adolescents between 11 and 19 years old (M = 13 90;SD = 1 85) and their main caregivers participated, 93 50%…

Frail elderly with and without cognitive impairment at the end of life: Their emotional state and the wellbeing of their family caregivers.

Abstract Purpose of the study (1) To identify the main predictors of the emotional state of the frail elderly at the end-of-life and that of their primary family caregivers, taking into consideration the presence/absence of significant cognitive impairment in the patient and (2) to analyse the relationship between the emotional state of the patient and that of their primary family caregiver. Methods Our study is cross-sectional. 85 frail elderly patients at the end-of-life and their primary family caregivers participated. Information on the following aspects was collected: (1) From the patients: Socio-demographics, Functional independence, and Cognitive and Emotional state; (2) From the car…

Emotional Distress of Patients at End-of-Life and Their Caregivers: Interrelation and Predictors

Background: Patients at the end of life and their families experience a strong emotional impact. The well-being of these patients and that of their family caregiver are related. Aim: To study the variables related with the emotional well-being of patients with and without cognitive impairment at the end of life and that of their primary family caregivers. Design: Cross- sectional study. Participants: Data was collected from 202 patients at the end of life with different diagnosis (COPD, cancer, and frail elderly) as well as from their respective 202 primary family caregivers. Results: Structural equation models indicated that the emotional state of the patients was best predicted by their f…

Predictors in Complicated Grief: Supporting Families in Palliative Care Dealing with Grief

The construction of a person's identity is an evolutionary process. Living implies passing through a series of bereavements and this development gives time to the ego for the management of loss. It also permits recovery from the transitory moments of alteration of identity (Grinberg, 1980). As it has been thoroughly documented, in problematic cases, if the management of bereavement fails, serious disturbances in bereavement or pathological formations happen (Gamo & Pazos, 2009).

What are the risk and protective factors for the well-being of adolescents with CF?

La fibrosis quística (FQ) es una enfermedad crónica y hereditaria que compromete la vida de quienes la padecen, y se hace especialmente importante su impacto en la adolescencia. El afrontamiento que estos pacientes y sus familiares hagan de estas circunstancias que les han tocado vivir, puede mejorar o empeorar el curso y desenlace de la enfermedad. El objetivo es conocer los factores de riesgo y protectores que influyen en el bienestar de los adolescentes con FQ. Para ello se realizó una búsqueda bibliográfica de la literatura científica siguiendo la guía PRISMA en las siguientes bases de datos: Web of Science, ProQuest y Scopus. Se incluyeron artículos centrados en factores psicológicos d…

Emotional distress in family caregivers of adolescents with bronchial asthma: analysis of its predictors

Adolescents with asthma face problems inherent to this stage in their development, to which the challenges of taking over control of their disease, complying with a daily treatment and regular medical followup are added. Any rejection generated by this may lead to treatment non-adherence and poor asthma control, which brings about problems in family dynamics, made worse by the stress or the emotional distress that this situation causes in caregivers.Identify adjustment profiles and predictors of risk for the well-being of caregivers of pediatric patients with bronchial asthma.Seventy-nine family caregivers of pediatric patients with bronchial asthma. Instruments were used to assess the emot…

Relationships between affective states and childhood internalizing disorders

Internalizing disorders are mainly defined as psychosomatic, anxiety and depression problems. The aim of this study was to analyze the relationships between dairy affective states and internalizing disorders in early adolescence (10–12 years old), considering the influence of sex. The participants of the study were 367 children aged between 10 and 12 (190 girls and 177 boys). The results showed that fear was the best predictor for all internalizing disorders, and the only common predictor for all of them. The prediction of boys' internalizing disorders was based only in fear, whereas the prediction for girls involved more variables besides fear. An early detection/regulation of these affect…

Trastorno mental y tipo de sustancia consumida: estudio piloto sobre la utilización de la Entrevista de Cribado de Patología Dual (ECDD)

Introduction: Dual pathology defines an illness case when a substance abuse disorder and a mental disorder simultaneously affect an individual patient. Both disorders influence each other, mutually, that its recommended what recommends to treat them together. Objective: to analyse the psychopatologic character and its association with different types of substances, evaluated through the Dual Pathology Screening interview (ECDD). Method: the participants were 63 patients between 18 and 45 years, with an average age of 37.7 years (SD = 9.6), assisted in the Unit of Addictive Behaviours of a Valencia town. The sociodemographic variables, clinical and toxycologic, were evaluated through the que…

Patients with limited communication in end-of-life situations: Initial psychometric properties of a discomfort observation scale

This work presents an observational scale which takes into account different observable indicators of discomfort of patients in end-of-life situations with difficulties in communicating due to cognitive impairment, fatigue or sedation and provides details of its validation. In all, 71 adults participated. Model fit was adequate ( χ2(27) = 43.28, p = .024, comparative fit index = .975, root mean square error of approximation = .092 and confidence interval 90% (.033–.140)). Alpha coefficient was .70 and composite reliability index was .90. Our study provides data regarding the properties of a discomfort assessment scale. Such a scale is needed and could be very useful for the evaluation of su…

Psychosocial Factors and Chronic Illness as Predictors for Anxiety and Depression in Adolescence

Adolescence is a challenging time when emotional difficulties often arise. Self-esteem, good relationships with peers, and emotional competences can buffer the effects of these difficulties. The difficulties can be even greater when coupled with the presence of a chronic physical illness (CD). Our goal is to analyze psychosocial factors and CD as predictors for anxiety and depression. It was compared the results of structural equation models (SEM) with models based on qualitative comparative analysis (QCA) to analyze the possible influence of these variables on levels of anxiety-depression in adolescents with and without CD. The sample consisted of 681 adolescents, between 12 and 16 years o…

Anticipated Grief in Relatives of People with Alzheimer's Disease: Discourse Analysis

Resumen La enfermedad de Alzheimer (EA) es la demencia más frecuente, considerada un proceso crónico e incurable. Los cuidadores de personas con EA pueden experimentar duelo anticipado. El objetivo fue observar el desarrollo de duelo anticipado en familiares de personas con EA. Participaron 10 cuidadores familiares de personas con EA en estado moderado o avanzado (70 % mujeres), de entre 18 y 80 años. Respondieron una entrevista semiestructurada (sentimientos, reconocimiento de la muerte, reorganización familiar, esperanza, facilitación o resistencia a la muerte y aproximación o distanciamiento del familiar). Se empleó la técnica del análisis cualitativo del contenido empleando la triangula…

Diabetes mellitus tipo1: factores psicosociales y adaptación del paciente pediátrico y su familia. Revisión

Type 1 diabetes mellitus is the most common chronic endocrine disease in children, with a very low incidence in the first months of life and reaching its peak during puberty (10-15 years old is the age group with the highest incidence at the time of onset). Based on the review of the scientific literature, our objective is to study the main psychosocial factors associated with the adjustment of these pediatric patients and their families. Research underscore the following risk factors: situational (stressful life events), personal (additional physical diseases, low self-esteem, emotional disturbances), and interpersonal (family breakdown and conflicts), and also protection factors (coping s…

Personalidad y Autoestima: Un análisis sobre el importante papel de sus relaciones

The five factor model has been established as one of the main approaches in the study of personality. After its emergence, one of the most important aspects to be analyzed has been its relationship with self-esteem, considering the central role that the latest has in the model. In spite of the large empirical support existing about this relationship, the need of a deeper understanding of its theoretical nature has been pointed out. The aim of our work joins the previous research, in analyzing the existence of relationships between personality factors and self-esteem. The sample was 576 university students, between 18- 35 years old. The present findings show that self-esteem is negatively as…

Primary ciliary dyskinesia and psychological well-being in adolescence.

Primary ciliary dyskinesia (PCD) is a rare autosomal recessive disease with low prevalence in pediatrics. Health studies have not sufficiently analyzed the role of psychological variables in rare diseases such as PCD. This paper studies the psychological characteristics of a group of pediatric patients diagnosed with PCD compared to their healthy peers. The sample consisted of 48 preadolescents-adolescents, aged 9-18 years (M = 12.96; SD = 2.71), with similar distribution by sex, and 25% of the patients having dyskinesia. Clinical anxiety-depression, self-esteem and psychological well-being were evaluated using questionnaires: the Adolescent Psychological Well-being Scale (BIEPS-J), the Hos…

Screening of complicated grief

Objetivo: Conocer en profundidad el fenómeno del duelo complicado o patológico, y recabar aquellos indicadores de detección y evaluación que nos permitan su pronta identificación en la práctica clínica. Método: Tras una amplia revisión de la literatura científica aparecida en los últimos años, y a la luz de nuestra experiencia profesional, se realizó una recopilación de los indicadores más significativos. Resultados: Presentamos los principales criterios diagnósticos e instrumentos de medida utilizados en la actualidad, que permiten a los profesionales del ámbito de la salud valorar con precisión posibles complicaciones en el proceso de duelo. Conclusiones: Contamos con importantes indicado…

El autoconcepto y la adaptación a la enfermedad en pacientes diabéticos pediátricos

ResumenNuestro objetivo es estudiar el autoconcepto y la adaptación a la enfermedad en pacientes pediátricos diabéticos. Como instrumentos de evaluación se utilizaron el registro ad-hoc para las variables sociodemográficas y de enfermedad, el cuestionario de Autoconcepto Garley (CAG) y cuestionario de respuesta adaptativa a la enfermedad en pacientes diabéticos. La muestra constó de 23 sujetos evaluados en un único momento de medida, todos ellos niños y adolescentes entre 8 y 16 años de edad. Los resultados muestran cómo aproximadamente el 50% de niños y adolescentes con diabetes tipo I presentan un autoconcepto bajo en la mayoría de las dimensiones estudiadas, destacando cómo cerca del 30%…

Adaptation to Disease and Anxiety-Depressive Clinic in the Paediatric Patient with Primary Ciliary Dyskinesia

Introduction: Primary ciliary dyskinesia is a rare, autosomal recessive disease of low prevalence in paediatrics. Studies in psychology have not analysed the role of family-psychological variables in rare diseases such as primary ciliary dyskinesia. Objectives: this study aims to analyse the presence of clinical anxiety-depressive and perception threat of disease in patients with dyskinesia and evaluate the adaptation to the disease. Material-Methods: All patients with primary ciliary dyskinesia (9 to 18 years of age), attended in the Infantile Pneumology Unit of HCUV, from July 2015 to January 2019, who accepted to complete the Anxiety Depression (HADS) and Perception of Disease Threat (BI…

Psycho-emotional adjustment in parents of adolescents: A cross-sectional and longitudinal analysis of the impact of the COVID pandemic

Abstract Purpose: adolescence is a time of change and it generally entails a greater family vulnerability thus; the aim of this study was to identify the risk factors for poor emotional adjustment to COVID among parents of adolescents. Design and methods: 94 parents of adolescents (11–18 years old, M = 13.90, SD = 1.85) participated at different times during the state of alert in Spain. 91.5% were mothers. Their ages ranged from 35 to 63 years (M = 46.54; SD = 5.09). The variables assessed were anxiety, depression and stress (DASS), moods (MOOD), somatization (SCL) and resilience (CD-RISC). Descriptive analyses, t-tests, ANOVAs, correlations, and hierarchical regressions were performed. All…

Factors associated with stress when caring for a child with a short stature

Short stature (SS) is one of the main diagnoses in Pediatric Endocrinology. SS can have a negative impact on family dynamics, causing stress and psychopathology. Poor adaptation by the family caregiver negatively affects the pedi- atric patient. Our objective was therefore to study the adjustment of the main family caregivers of pediatric patients with SS, analyzing the factors influencing it. One hundred and ten primary family caregivers of pediatric SS patients from hospitals in Valencia, Spain, participated. Parental stress (Pediatric Inventory for Parents), anxious and depres- sive symptoms (Hospital Anxiety and Depression Scale), family functioning (Family Cohesion and Adaptation Scale…

A brief version of the Pediatric Inventory for Parents (PIP) in Spanish population: Stress of main family carers of chronic paediatric patients.

A chronic illness in childhood has a negative impact on the paediatric patient and on family functioning. Psychological stress in parents influences the level of adjustment to the illness of their children. The Pediatric Inventory for Parents (PIP) was designed to measure stress in parents whose child has a chronic illness or requires prolonged medical monitoring. The main objective of this study is to provide a brief version of the Spanish translation of the PIP, across a sample consisting of 465 main familial caregivers (85.2% female, n = 396) between 27 and 67 years old ([Formula: see text] = 44.13; SD = 5.35) of paediatric patients between 9 and 18 years old ([Formula: see text] = 12.10…

Self-concept and adaptation to illness in pediatric diabetic patients

Nuestro objetivo es estudiar el autoconcepto y la adaptación a la enfermedad en pacientes pediátricos diabéticos. Como instrumentos de evaluación se utilizaron el registro ad-hoc para las variables sociodemográficas y de enfermedad, el cuestionario de Autoconcepto Garley (CAG) y cuestionario de respuesta adaptativa a la enfermedad en pacientes diabéticos. La muestra constó de 23 sujetos evaluados en un único momento de medida, todos ellos niños y adolescentes entre 8 y 16 años de edad. Los resultados muestran cómo aproximadamente el 50% de niños y adolescentes con diabetes tipo I presentan un autoconcepto bajo en la mayoría de las dimensiones estudiadas, destacando cómo cerca del 30% de los…

Terapia basada en la compasión: regulación emocional, apego y salud mental

Los sucesos vitales estresantes (SVE) pueden influir en nuestras vinculaciones, y con ello en: la compasión, la regulación emocional y en nuestro bienestar físico y psicológico. El objetivo del presente artículo es proponer e implementar un programa de intervención basado en la compasión (TBC). Tras la firma del consentimiento informado, los participantes (n=8) respondieron cuestionarios sobre vinculaciones afectivas, regulación emocional, compasión, (SVE) y emocionalidad. Nuestros resultados previos al tratamiento muestran perfiles de desajuste marcados por la vinculación insegura, las dificultades de regulación, la baja autocompasión y la elevada emocionalidad negativa. Tras el tratamient…

Satisfacción con la vida, vitalidad y emociones positivas como factores de protección ante el duelo complicado

Objetivo: Valorar la satisfacción con la vida, la vitalidad, el afecto positivo y la presencia de duelo complicado en dolientes de primer grado. Método: 26 dolientes de 19 a 73 años, hombres y mujeres, fueron evaluados mediante las Escalas de Satisfacción con la Vida, de Vitalidad y de Afecto Positivo y Negativo, y el Inventario de Duelo Complicado. Se efectuaron análisis descriptivos y se aplicaron las pruebas t de Pearson y d de Cohen para obtener correlaciones entre las variables. Resultados: Los participantes alcanzaron puntuaciones moderadas de satisfacción con la vida, vitalidad y afecto positivo, pero un gran porcentaje mostró duelo complicado, mayor en los hombres y cuando la pérdid…