Quality, comparability and methods of analysis of data on childhood cancer in Europe (1978-1997): report from the Automated Childhood Cancer Information System project.

6533b82ffe1ef96bd1294930

RESEARCH PRODUCT

Quality, comparability and methods of analysis of data on childhood cancer in Europe (1978-1997): report from the Automated Childhood Cancer Information System project.

E Steliarova Foucher P Kaatsch B Lacour V Pompe Kirn S Eser A Miranda A Danzon A Ratiu D. M. Parkin Marina Vercelli A. Puppo

subject

Cancer Research Pediatrics Databases Factual MESH: Registries MESH : Child Preschool [ SDV.CAN ] Life Sciences [q-bio]/Cancer 0302 clinical medicine MESH : Child Neoplasms MESH: Child Epidemiology Medicine MESH: Neoplasms Registries 030212 general & internal medicine MESH: Incidence Child education.field_of_study Incidence Incidence (epidemiology)Comparability MESH: Infant Newborn Quality - methods - childhood cancer - Europe MESH : Infant MESH : Adult MESH: Infant MESH : Incidence 3. Good health Europe MESH: Reproducibility of Results Oncology Child Preschool 030220 oncology & carcinogenesis MESH: Survival Analysis Adult medicine.medical_specialty Adolescent Population MESH : Europe MEDLINE [SDV.CAN]Life Sciences [q-bio]/Cancer MESH : Databases Factual MESH : Infant Newborn 03 medical and health sciences Environmental health MESH : Adolescent Humans education Survival analysis MESH: Adolescent MESH: Humans business.industry MESH : Reproducibility of Results MESH: Child Preschool MESH : Humans Infant Newborn Infant Reproducibility of Results Cancer MESH: Adult medicine.disease Survival Analysis MESH: Databases Factual MESH : Neoplasms Data quality MESH: Europe MESH : Survival Analysis business MESH : Registries

description

International audience; In collaboration with 62 population-based cancer registries contributing to the Automated Childhood Cancer Information System (ACCIS), we built a database to study incidence and survival of children and adolescents with cancer in Europe. We describe the methods and evaluate the quality and internal comparability of the database, by geographical region, period of registration, type of registry and other characteristics. Data on 88,465 childhood and 15,369 adolescent tumours registered during 1978-1997 were available. Geographical differences in incidence are caused partly by differences in definition of eligible cases. The observed increase in incidence rates cannot be explained by biases due to the selection of datasets for analyses, and only partially by the registration of non-malignant or multiple primary tumours. Part of the observed differences in survival between the regions may be due to variable completeness of follow-up, but most is probably explained by resource availability and organisation of care. Further standardisation of data and collection of additional variables are required so that this study may continue to yield valuable results with reliable interpretation.

year	journal	country	edition	language
2006-09-01

10.1016/j.ejca.2006.05.007 https://hal.archives-ouvertes.fr/hal-00484210